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Table 1 Socio-demographic statistics for total sample and divided across disease stages

From: Health-related quality of life and unmet healthcare needs in Huntington’s disease

Variables Categories Complete sample (N = 84) Stage I (n = 12) Stage II (n = 22) Stage III (n = 19) Stage IV (n = 14) Stage V (n = 17) p-value
Mean (SD) Mean (SD) Mean (SD) Mean (SD) Mean (SD) Mean (SD)
Ageb   56.7 (11.4) 49.8 (9.5) 54.6 (12.9) 58.9 (11.1) 61.1 (11.5) 57.8 (9.0) 0.084
Education (years)b   12.9 (3.5) 14.3 (3.3) 13.8 (3.8) 11.7 (3.2) 12.5 (3.7) 12.4 (3.3) 0.179
   n (%) n (%) n (%) n (%) n (%) n (%) P-value (2-sided)
Gender Female 37 (44) 5 (42) 8 (36.4) 7 (37) 7 (50) 10 (59) 0.616
Male 47 (56) 7 (58) 14 (63.6) 12 (63) 7 (50) 7 (41)
Education Lower (≤12 years) 51 (60.7) 5 (42) 11 (50) 15 (79) 9 (64.3) 11 (65) 0.221
Higher (>12 years) 33 (39.3) 7 (58) 11 (50) 4 (21) 5 (45.7) 6 (35)
Civil status Single 36 (42.9) 4 (33) 7 (31.8) 9 (47) 8 (57.1) 8 (47) 0.560
Married 48 (57.1) 8 (67) 15 (68.2) 10 (53) 6 (42.9) 9 (53)
Occupationa Manual 40 (47.6) 5 (42) 9 (40.1) 12 (63) 6 (46.1) 8 (47) 0.643
Non-manual 41 (48.8) 7 (58) 13 (59.1) 7 (37) 7 (53.8) 7 (41)
Occupational status Employed 14 (16.7) 11 (92) 3 (13.6) 0 (0) 0 (0) 0 (0) 0.000
Unemployed 70 (83.3) 1 (8) 19 (86.4) 19 (100) 14 (100) 17 (100)
Housing situation Living at home 52 (61.9) 12 (100) 22 (100) 13 (68) 5 (35.7) 0 (0) 0.000
Not living at home 32 (38.1) 0 (0) 0 (0) 6 (32) 9 (64.3) 17 (100)
Residence Rural 12 (14.3) 1 (8) 3 (13.6) 2 (10.5) 3 (21.4) 3 (18) 0.859
Urban 72 (85.7) 11 (92) 19 (86.4) 17 (89.5) 11 (78.6) 14 (82)
Informant Patient 27 (32.1) 9 (75) 14 (63.6) 4 (21) 0 (0) 0 (0) 0.000
Patient & informant 49 (58.3) 3 (25) 8 (36.4) 15 (79) 14 (100) 17 (100)
Informant only 8 (9.6) 0 (0) 0 (0) 0 (0) 0 (0) 0 (0)
  1. SD Standard deviation; a3 responses missing (1 in Stage IV and 2 in stage V); busing ANOVA, all other variables Chi-square