Table 1 Socio-demographic statistics for total sample and divided across disease stages
From: Health-related quality of life and unmet healthcare needs in Huntington’s disease
Variables | Categories | Complete sample (N = 84) | Stage I (n = 12) | Stage II (n = 22) | Stage III (n = 19) | Stage IV (n = 14) | Stage V (n = 17) | p-value |
|---|---|---|---|---|---|---|---|---|
Mean (SD) | Mean (SD) | Mean (SD) | Mean (SD) | Mean (SD) | Mean (SD) | |||
Ageb | 56.7 (11.4) | 49.8 (9.5) | 54.6 (12.9) | 58.9 (11.1) | 61.1 (11.5) | 57.8 (9.0) | 0.084 | |
Education (years)b | 12.9 (3.5) | 14.3 (3.3) | 13.8 (3.8) | 11.7 (3.2) | 12.5 (3.7) | 12.4 (3.3) | 0.179 | |
n (%) | n (%) | n (%) | n (%) | n (%) | n (%) | P-value (2-sided) | ||
Gender | Female | 37 (44) | 5 (42) | 8 (36.4) | 7 (37) | 7 (50) | 10 (59) | 0.616 |
Male | 47 (56) | 7 (58) | 14 (63.6) | 12 (63) | 7 (50) | 7 (41) | ||
Education | Lower (≤12 years) | 51 (60.7) | 5 (42) | 11 (50) | 15 (79) | 9 (64.3) | 11 (65) | 0.221 |
Higher (>12 years) | 33 (39.3) | 7 (58) | 11 (50) | 4 (21) | 5 (45.7) | 6 (35) | ||
Civil status | Single | 36 (42.9) | 4 (33) | 7 (31.8) | 9 (47) | 8 (57.1) | 8 (47) | 0.560 |
Married | 48 (57.1) | 8 (67) | 15 (68.2) | 10 (53) | 6 (42.9) | 9 (53) | ||
Occupationa | Manual | 40 (47.6) | 5 (42) | 9 (40.1) | 12 (63) | 6 (46.1) | 8 (47) | 0.643 |
Non-manual | 41 (48.8) | 7 (58) | 13 (59.1) | 7 (37) | 7 (53.8) | 7 (41) | ||
Occupational status | Employed | 14 (16.7) | 11 (92) | 3 (13.6) | 0 (0) | 0 (0) | 0 (0) | 0.000 |
Unemployed | 70 (83.3) | 1 (8) | 19 (86.4) | 19 (100) | 14 (100) | 17 (100) | ||
Housing situation | Living at home | 52 (61.9) | 12 (100) | 22 (100) | 13 (68) | 5 (35.7) | 0 (0) | 0.000 |
Not living at home | 32 (38.1) | 0 (0) | 0 (0) | 6 (32) | 9 (64.3) | 17 (100) | ||
Residence | Rural | 12 (14.3) | 1 (8) | 3 (13.6) | 2 (10.5) | 3 (21.4) | 3 (18) | 0.859 |
Urban | 72 (85.7) | 11 (92) | 19 (86.4) | 17 (89.5) | 11 (78.6) | 14 (82) | ||
Informant | Patient | 27 (32.1) | 9 (75) | 14 (63.6) | 4 (21) | 0 (0) | 0 (0) | 0.000 |
Patient & informant | 49 (58.3) | 3 (25) | 8 (36.4) | 15 (79) | 14 (100) | 17 (100) | ||
Informant only | 8 (9.6) | 0 (0) | 0 (0) | 0 (0) | 0 (0) | 0 (0) |