Table 2 Mean of difficulty and type of change in the cross-cultural process
From: Spanish version of the Parkinson’s Disease Questionnaire–Carer (PDQ-Carer)
Items of the PDQ-Carer | Mean (dt) difficulty | Type of change |
|---|---|---|
Item 7. Thought that your caring role was taken for granted by others? | 4.75 (0.96) | B |
Item 19. Felt that your workload around the house has increased significantly? | 4.75 (2.06) | B |
Item 16. Felt less in control of your temper than before you became a carer? | 4.50 (2.08) | B |
Item 3. Found the demands of caring physically difficult? | 4.25 (2.75) | B |
Item 4. Felt anxious because of the responsibility of caring? | 4.00 (2.94) | B |
Item 14. Felt more withdrawn because of your caring role? | 4.00 (0.82) | B |
Item 5. Been prevented from pursuing hobbies and other interests? | 3.75 (0.96) | A |
Item 18. Been limited in what you can do socially? | 3.75 (1.26) | B |
Item 24. Felt that you cannot do things on the spur of the moment? | 3.75 (2.22) | B |
Item 28. Felt responsible for Parkinson’s disease medication being available and taken at appropriate times? | 3.75 (2.76) | B |
Item 29. Had to limit outings because you worry that the person you care for won’t be able to cope? | 3.75 (2.50) | B |
Item 25. Found it difficult to be involved in regular activities which require commitment, e. g. volunteering work, regularly meeting friends? | 3.50 (2.38) | B |
Item 17. Felt worried about what would happen if you were unwell? | 3.25 (2.06) | A |
Item 20. Found it difficult to see friends and family? | 3.25 (2.06) | B |
Item 22. Felt that your physical health has been affected by your caring role? | 3.25 (1.89) | B |
Item 8. Felt that relationships with friends have been affected? | 3.00 (1.83) | B |
Item 12. Felt you lacked the energy and motivation to do the things you enjoy? | 3.00 (2.16) | B |
Item 21. Found it difficult to leave the person you care for alone for more than one hour? | 3.00 (2.16) | B |
Item 26. Paid less attention to your own health (e.g. put off visiting a doctor, ignored symptoms etc)? | 3.00 (2.16) | A |
Item 27. Felt unable to go on holiday or take short breaks? | 3.00 (1.82) | A |
Item 2. Found it difficult to get out, for example, to do the shopping? | 2.75 (2.06) | B |
Item 6. Felt worried about your own physical health? | 2.75 (2.06) | A |
Item 23. Felt that you are responsible for everything at home? | 2.75 (2.06) | A |
Item 9. Felt impatient with the person you care for? | 2.50 (1.73) | B |
Item 10. Felt exhausted? | 2.50 (1.29) | A |
Item 11. Felt worried about the future? | 2.25 (1.50) | A |
Item 1. Found you could not sleep through the night? | 2.00 (1.41) | A |
Item 13. Taken less care with your diet? | 1.75 (0.96) | A |
Item 15. Felt depressed? | 1.50 (1.00) | A |