Table 12 Final version of LC-PROM
From: LC-PROM: Validation of a patient reported outcomes measure for liver cirrhosis patients
A. Physical Domain | |||||
|---|---|---|---|---|---|
Never | Occasionally | About half of the time | Often | Almost everyday | |
1. I felt abdominal distension | 0 | 1 | 2 | 3 | 4 |
2. I felt fatigue | 0 | 1 | 2 | 3 | 4 |
3. I had pain in right upper quadrant | 0 | 1 | 2 | 3 | 4 |
4. I had melena | 0 | 1 | 2 | 3 | 4 |
5. I had haematemesis | 0 | 1 | 2 | 3 | 4 |
6. I vomited or nauseated | 0 | 1 | 2 | 3 | 4 |
7. My face looked dark and dull | 0 | 1 | 2 | 3 | 4 |
8. I felt itchy in skin | 0 | 1 | 2 | 3 | 4 |
9. I felt loss of appetite | 0 | 1 | 2 | 3 | 4 |
10. I had abnormal tastes (bitter, sweet, or stick) | 0 | 1 | 2 | 3 | 4 |
11. I felt sleepy in daytime | 0 | 1 | 2 | 3 | 4 |
12. I was losing weight | 0 | 1 | 2 | 3 | 4 |
13. I had edema in my legs | 0 | 1 | 2 | 3 | 4 |
14. I felt forgetful | 0 | 1 | 2 | 3 | 4 |
15. I was slow in reacting | 0 | 1 | 2 | 3 | 4 |
Unable | Occasionally | About half of the time | Often | Always | |
16. I can do shopping as usual (like buying vegetables or daily necessities) | 0 | 1 | 2 | 3 | 4 |
17. I can do simple housework (like cooking, dumping) | 0 | 1 | 2 | 3 | 4 |
18. I can do some simple outdoor activities (like walking) | 0 | 1 | 2 | 3 | 4 |
B. Psychological Domain | |||||
Never | Occasionally | About half of the time | Often | Almost everyday | |
1. I felt anxious easier than usual | 0 | 1 | 2 | 3 | 4 |
2. I felt upset or fear easily | 0 | 1 | 2 | 3 | 4 |
3. I was annoyed at abdominal pain and indigestion | 0 | 1 | 2 | 3 | 4 |
4. I had poor sleep at night | 0 | 1 | 2 | 3 | 4 |
5. I felt restless and had to activate | 0 | 1 | 2 | 3 | 4 |
6. I felt in a blue mood | 0 | 1 | 2 | 3 | 4 |
7. I felt like crying | 0 | 1 | 2 | 3 | 4 |
8. I felt angry easier than usual | 0 | 1 | 2 | 3 | 4 |
9. I was worried about that my liver disease would infect my family | 0 | 1 | 2 | 3 | 4 |
10. I felt vague about my future | 0 | 1 | 2 | 3 | 4 |
11. I lost interests in what interested me before | 0 | 1 | 2 | 3 | 4 |
12. I didn’t have any hope about my future | 0 | 1 | 2 | 3 | 4 |
13. I felt unuseful about myself | 0 | 1 | 2 | 3 | 4 |
14. I was pessimistic and there was nothing to make me happy | 0 | 1 | 2 | 3 | 4 |
15. I was worried about that my liver cirrhosis would cause more serious disease (like cancer) | 0 | 1 | 2 | 3 | 4 |
16. I felt anxious about my disease outcome | 0 | 1 | 2 | 3 | 4 |
C. Social Domain | |||||
Never | Occasionally | About half of the time | Often | Almost everyday | |
1. My relatives and friends cared about my disease | 0 | 1 | 2 | 3 | 4 |
2. My family comforted me | 0 | 1 | 2 | 3 | 4 |
3. I told my worries to my family | 0 | 1 | 2 | 3 | 4 |
Never | Occasionally | About half of the time | Often | Almost everyday | |
4. I felt uncomfortable about friends’ strange eyes or attitude after I was ill | 0 | 1 | 2 | 3 | 4 |
5. I felt someone avoided me deliberately | 0 | 1 | 2 | 3 | 4 |
6. I avoided social occasions or activities because of disease (like parties) | 0 | 1 | 2 | 3 | 4 |
7. I gave up my hobbies before (like dancing, playing chess) | 0 | 1 | 2 | 3 | 4 |
8. I was lack of initiative in social life | 0 | 1 | 2 | 3 | 4 |
9. The disease affected my interpersonal relationships | 0 | 1 | 2 | 3 | 4 |
10. It was easy to relax being with others | 0 | 1 | 2 | 3 | 4 |
11. I continued to go to work at my original workplace | 0 | 1 | 2 | 3 | 4 |
12. I was worried about that the disease would affect my work, promotion or work force | 0 | 1 | 2 | 3 | 4 |
D. Therapeutic Domain | |||||
Very dissatisfied | Dissatisfied | General | Satisfied | Very satisfied | |
1. I was satisfied with current treatments | 0 | 1 | 2 | 3 | 4 |
2. I was satisfied with the medical services | 0 | 1 | 2 | 3 | 4 |
3. I was satisfied with the health care costs | 0 | 1 | 2 | 3 | 4 |
Unable | Occasionally | About half of the time | Often | Always | |
4. I can follow the doctor’s advice to give up bad living habits | 0 | 1 | 2 | 3 | 4 |
5. I can go to visit doctors regularly | 0 | 1 | 2 | 3 | 4 |
6. I can take medicine following the doctor’s advice (in hospital or at home) | 0 | 1 | 2 | 3 | 4 |
Never | Occasionally | About half of the time | Often | Almost everyday | |
7. I was tired of taking medicine often | 0 | 1 | 2 | 3 | 4 |
8. I felt annoyed about drawing blood and taking B ultrasonic examination | 0 | 1 | 2 | 3 | 4 |
9. I was worried about side effects of drugs | 0 | 1 | 2 | 3 | 4 |