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Table 11 Formation of LC-PROM item pool of 72

From: LC-PROM: Validation of a patient reported outcomes measure for liver cirrhosis patients

Item

Item

PHD1. Did you feel abdominal distension?

PSD8. Did you feel angry easier than usual?

PHD2. Did you have diarrhea?

PSD9. Were you more indifference to things than ever?

PHD3. Did you feel fatigue often?

PSD10. Did you worry about that your liver disease would infect your family?

PHD4. Did you have ascites?

PSD11. Did you feel vague about your future?

PHD5. Did you feel bellyache often?

PSD12. Did you think other people would live better if you died?

PHD6. Did you have pain in your liver area?

PSD13. Did you lose interests in what interested you before?

PHD7. Did you have melena?

PSD14 I thought I didn’t need any treatments because I wouldn’t be cured

PHD8. Did you have constipation?

PSD15. I didn’t have any hope about my future

PHD9. Did you have oliguria or no urine?

PSD16. Did you feel unuseful about yourself

PHD10. Did you have haematemesis?

PSD17. I was pessimistic and there was nothing to make me happy

PHD11. Did you vomit?

PSD18. Were you worried about that your liver cirrhosis would cause more serious disease (like cancer)?

PHD12. Were you pale in skin and mucosa?

PSD19. Did you feel anxious about your disease outcome?

PHD13. Did your skin turn yellow?

PSD20. Did you have determination to fight with the disease?

PHD14. Did you look dark and dull?

SOD1. Did your relatives and friends care about your disease?

PHD15. Did you feel dry in your eyes?

SOD2. Did your family take care of your living actively?

PHD16. Did you feel itchy in skin?

SOD3. Did your family comfort you?

PHD17. Did you have symptoms of bleeding gums or nasal bleeding?

SOD4. Did you tell your worries to your family?

PHD18. Did you feel loss of appetite?

SOD5. Did you feel uncomfortable about friends’ strange eyes or attitude after you were ill?

PHD19. Did you have abnormal tastes (bitter, sweet, or stick)

SOD6. Did you feel someone avoided you deliberately?

PHD20. Did you feel sleepy in daytime?

SOD7. Did you avoid social occasions or activities because of disease (like parties)?

PHD21. Did you feel dizzy?

SOD8. Did you give up your hobbies before (like dancing, playing cards)

PHD22. Were you losing weight?

SOD9. Were you lack of initiative in social life?

PHD23. Did you feel breath hard?

SOD10. Did the disease affect your interpersonal relationships?

PHD24. Did you have edema in your legs?

SOD11. Did you continue to go to work at your original workplace?

PHD25. Did you feel mental decline?

SOD12. Were you worried about the disease would affect your work or promotion?

PHD26. Did you feel forgetful?

TRD1. Were you satisfied with current treatments?

PHD27. Could you do shopping as usual (like buying vegetables or daily necessities)?

TRD2. Were you satisfied with the medical services?

PHD28. Can you do simple housework (like cooking, dumping)

TRD3. Were you satisfied with the health care costs?

PHD29. Can you do some simple outdoor activities (like walking)?

TRD4. Can you follow the doctor’s advices to give up bad living habits ?

PSD1. Did you feel anxious easier than usual?

TRD5. Can you go to visit doctors regularly?

PSD2. Did you feel upset or fear easily?

TRD6. Can you take medicine following the doctor’s advice (in hospital or at home)?

PSD3. Were you difficult to fall asleep, dreaming and waking up early?

TRD7. Were you tired of taking medicine often?

PSD4. Did you feel restless and have to activate?

TRD8. Did you feel annoyed about drawing blood and taking B ultrasonic examination?

PSD5. Did you feel in a blue mood?

TRD9. Did you know side effects of pharmaceutical drugs?

PSD6. Did you feel like crying?

TRD10. Were you worried about side effects of drugs?

PSD7. Did you often feel lonely?

TRD11. Did treatments increase your life confidence?