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Table 7 Mean utility values for HH related symptoms

From: Quality of life utility values for hereditary haemochromatosis in Australia

Experienced in the last 3 months

mean HSUV

SD

n

Males

Females

mean HSUV

SD

n

mean HSUV

SD

n

General effects

 Chronic fatigue

0.55

0.29

102

0.56

0.31

37

0.55

0.29

65

 Weakness

0.49

0.26

87

0.51

0.28

33

0.48

0.26

54

 Unexplained weight loss

0.42

0.40

10

1.00

-

1

0.35

0.36

9

 Unexplained weight gain

0.50

0.26

30

0.37

0.31

8

0.55

0.23

22

Liver disease

 Abdominal swelling

0.40

0.25

35

0.41

0.33

9

0.39

0.22

26

 Abdominal pain/discomfort

0.47

0.26

47

0.51

0.31

12

0.46

0.25

35

 Enlarged liver (hepatomegaly)

0.40

0.24

15

0.57

0.19

6

0.29

0.21

9

Cardiac-related problems

 Swelling of feet and/or ankles

0.46

0.23

47

0.43

0.24

17

0.48

0.22

30

 Shortness of breath- walking quickly or uphill

0.50

0.27

64

0.54

0.27

24

0.48

0.26

40

 Shortness of breath- walking on level ground

0.36

0.26

29

0.39

0.26

14

0.33

0.27

15

 Shortness of breath- resting in a chair

0.31

0.25

8

0.32

0.45

3

0.21

0.24

5

 Heart failure or weak heart

0.30

-

1

0.30

-

1

-

-

-

 Abnormal heart rhythm/ arrhythmia

0.55

0.23

25

0.61

0.17

8

0.52

0.26

17

 Heart disease

0.52

0.27

6

0.49

0.28

5

0.71

-

1

Arthritis

 Swollen/tender metacarpophalangeal joints (fingers/hands)

0.48

0.25

58

0.47

0.30

21

0.49

0.22

37

 Other joint stiffness/pain/ache

0.55

0.26

96

0.6

0.26

39

0.51

0.24

57

Skin changes

 Change in skin colour

0.45

0.29

25

0.50

0.35

8

0.43

0.27

17

 Increased facial hair growth

0.32

0.21

14

-

-

-

0.32

0.21

14

Reproductive

 Loss of libido and/or erectile dysfunction

0.49

0.27

49

0.48

0.27

17

0.49

0.28

32

 Unexplained confusion and/or memory loss

0.40

0.24

53

0.39

0.25

18

0.41

0.24

35

  1. Note: HSUV refers to health state utility values; SD standard deviation