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Table 7 Mean utility values for HH related symptoms

From: Quality of life utility values for hereditary haemochromatosis in Australia

Experienced in the last 3 months mean HSUV SD n Males Females
mean HSUV SD n mean HSUV SD n
General effects
 Chronic fatigue 0.55 0.29 102 0.56 0.31 37 0.55 0.29 65
 Weakness 0.49 0.26 87 0.51 0.28 33 0.48 0.26 54
 Unexplained weight loss 0.42 0.40 10 1.00 - 1 0.35 0.36 9
 Unexplained weight gain 0.50 0.26 30 0.37 0.31 8 0.55 0.23 22
Liver disease
 Abdominal swelling 0.40 0.25 35 0.41 0.33 9 0.39 0.22 26
 Abdominal pain/discomfort 0.47 0.26 47 0.51 0.31 12 0.46 0.25 35
 Enlarged liver (hepatomegaly) 0.40 0.24 15 0.57 0.19 6 0.29 0.21 9
Cardiac-related problems
 Swelling of feet and/or ankles 0.46 0.23 47 0.43 0.24 17 0.48 0.22 30
 Shortness of breath- walking quickly or uphill 0.50 0.27 64 0.54 0.27 24 0.48 0.26 40
 Shortness of breath- walking on level ground 0.36 0.26 29 0.39 0.26 14 0.33 0.27 15
 Shortness of breath- resting in a chair 0.31 0.25 8 0.32 0.45 3 0.21 0.24 5
 Heart failure or weak heart 0.30 - 1 0.30 - 1 - - -
 Abnormal heart rhythm/ arrhythmia 0.55 0.23 25 0.61 0.17 8 0.52 0.26 17
 Heart disease 0.52 0.27 6 0.49 0.28 5 0.71 - 1
Arthritis
 Swollen/tender metacarpophalangeal joints (fingers/hands) 0.48 0.25 58 0.47 0.30 21 0.49 0.22 37
 Other joint stiffness/pain/ache 0.55 0.26 96 0.6 0.26 39 0.51 0.24 57
Skin changes
 Change in skin colour 0.45 0.29 25 0.50 0.35 8 0.43 0.27 17
 Increased facial hair growth 0.32 0.21 14 - - - 0.32 0.21 14
Reproductive
 Loss of libido and/or erectile dysfunction 0.49 0.27 49 0.48 0.27 17 0.49 0.28 32
 Unexplained confusion and/or memory loss 0.40 0.24 53 0.39 0.25 18 0.41 0.24 35
  1. Note: HSUV refers to health state utility values; SD standard deviation