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Table 3 Item response summaries for SSSMQ (n=87) avalues rounded to 2 decimal places

From: Development and psychometric evaluation of a new patient -reported outcome measure for stroke self -management: The Southampton Stroke Self - Management Questionnaire (SSSMQ)

Item No

Item (r- denotes reverse score)

Meana

SDa

1

The effects of stroke mean that I cannot manage my recovery and health (r)

4.23

1.54

2

When things do not go well with my stroke, it is hard to stay positive (r)

3.04

1.45

3

It is not up to me to decide what the best ways to manage my stroke are (r)

2.72

1.19

4

The physical effects of stroke mean that I cannot manage my health as I would like (r)

3.84

1.60

5

It is hard to be motivated to seek out solutions to problems relating to stroke (r)

3.25

1.47

6

I am not sure what signs or symptoms might mean my health is changing (r)

4.27

1.56

7

My problems with communication mean that I cannot manage my health as I would like (r)

3.92

1.68

8

Whatever I do, I will not improve my condition (r)

4.50

1.15

9

The efforts I take to manage my health have a positive effect

4.84

1.11

10

I find it difficult to tell health care professionals what I want or need (r)

4.83

1.27

11

I work out ways of managing my health following stroke together with health care professionals

3.68

1.41

12

I am confident that health care professionals can answer my questions

4.87

1.41

13

I feel confident at discussing any advice I don’t understand with Doctors

3.90

1.64

14

I feel confident at getting the information I need from health care professionals

3.50

1.58

15

I know how to get help if I am concerned about my condition

3.86

1.41

16

I plan my day so I can get things done without being tired

4.18

1.41

17

I feel confident asking family members to help me do things important to my health

4.08

1.29

18

I manage things related to stroke as well as other people with stroke

3.19

1.64

19

I try different ways of doing things, until I find out what works for me

4.24

1.66

20

Ideas and things that work for other people with stroke are helpful to my recovery

4.27

1.62

21

I have useful information or advice to give to others regarding managing stroke

3.83

1.57

22

I feel comfortable asking friends to help me do things important to my health

4.12

1.48

23

I am concerned that the things I do to manage stroke, may cause harm if not guided by health care professionals (r)

4.58

1.09

24

I cannot alter what my healthcare professionals decide to do about my stroke (r)

4.67

1.03

25

My condition would improve if I received more professional help (r)

4.55

1.23

26

Following advice from health care professionals is the only way I will manage stroke (r)

4.10

1.50

27

I always follow professional advice about my health, to the letter (r)

4.53

1.49

28

Constant professional advice would help me to manage my stroke (r)

4.56

1.03