Table 6 Demographic and Clinical Characteristics of the Second Cognitive Debriefing Sample (N = 24)
Germany (n = 12) | US (n = 12) | Total (n = 24) | |
|---|---|---|---|
Demographic Characteristics | |||
Age of patient | |||
Mean | 40.6 | 42.5 | 41.5 |
Min - Max | 23-61 | 21-60 | 21-61 |
Gender n (%) | |||
Male | 3 (25) | 6 (50) | 9 (37.5) |
Female | 9 (75) | 6 (50) | 15 (62.5) |
Highest education level n (%) | |||
Some high school | 1 (8.3) | 0 | 1 (2.4) |
High school diploma or GED | 2 (16.7) | 3 (25) | 5 (20.8) |
Some years of college | 3 (25) | 3 (25) | 6 (25) |
Vocational qualification or Apprenticeship | 5 (41.7) | 1 (8.3) | 6 (25) |
University or College degree | 1 (8.3) | 4 (33.3) | 5 (20.8) |
Post-graduate degree or qualification | 0 | 1 (8.3) | 1 (4.2) |
Clinical Characteristics | |||
Type of Hereditary Angioedema n (%) | |||
Type I | 11 (91.7) | 12 (100) | 23 (95.8) |
Type II | 1 (8.3) | 0 | 1 (4.2) |
Type of Hereditary Angioedema attack(s) experienced in the past six monthsa n (%) | |||
Cutaneous edema (skin swelling) | 10 (83.3) | 11 (91.6) | 21 (87.5) |
Abdominal edema (internal swelling) | 8 (66.7) | 7 (29.2) | 15 (62.5) |
Laryngeal edema (throat swelling) | 2 (16.6) | 2 (16.6) | 4 (16.7) |
Type of Hereditary Angioedema attack(s) experienced most recentlya n (%) | |||
Cutaneous edema (skin swelling) | 9 (75) | 8 (66.7) | 17 (70.8) |
Abdominal edema (internal swelling) | 5 (41.6) | 5 (41.6) | 10 (41.6) |
Laryngeal edema (throat swelling) | 0 (0) | 0 (0) | 0 (0) |
Days since last attack | |||
Mean | 784 | 64.25 | 424 |
Min – Max | 1-8604 | 3-405 | 1-8604 |
Hereditary Angioedema diagnosis by n (%) | |||
General Practitioner (GP) | 1 (8.3) | 2 (16.7) | 13 (12.5) |
Hereditary Angioedema Specialist | 7 (58.3) | 5 (41.7) | 12 (50) |
Diagnosed because other family members had the condition | 4 (33.3) | 4 (33.3) | 8 (33.3) |
Other | 0 (0) | 1 (8.3) | 1 (4.2) |