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Table 3 Assessment of coverage of HAE symptoms by the HAE PRO

From: Development and content validity testing of a patient-reported outcomes questionnaire for the assessment of hereditary angioedema in observational studies

Symptoms assessed by HAE PRO and mentioned by patients Additional symptoms mentioned by patients (n = 43)
Abdominal pain (n = 30) Stomach/bowel swelling (n = 13)
Skin swelling (n = 28) Spasms/cramping (n = 8)
Vomiting (n = 15) Tiredness (n = 8)
Nausea (n = 11) Stomach ache (n = 6)
Diarrhoea (n = 13) Difficulty breathing (n = 5)
Skin pain (n = 11) Sore skin (n = 4)
Erythema (skin redness) (n = 8) Constipation (n = 3)
Skin irritation (n = 5) Tingling (n = 3)
Voice change (n = 4) Tight skin (n = 3)
Difficulty swallowing (n = 3) Red rings (n = 2)
  Itching (n = 2)
  Burning (n = 2)
  Discomfort (n = 2)
  Passing out/drop in blood pressure (n = 2)
  Tight esophagus (n = 2)
  Throat pain (n = 2)