Table 1 Demographic and Clinical Characteristics of the Concept Elicitation Samples (N = 43)
Demographic or clinical characteristic | Initial Concept Elicitation Sample | Second Concept Elicitation Sample |
|---|---|---|
(N = 32) | (N = 11) | |
Demographic Characteristics | ||
Age | ||
Mean | 39.5 | 38 |
Median | 39.5 | 36 |
Min, Max | 20-75 | 19-54 |
Gender (n) (%) | ||
Male | 9 (28.1) | 5 (45.5) |
Female | 23 (71.9) | 6 (54.5) |
How would you rate your health in general (n) (%) | ||
Excellent | 1 (3.1) | 2 (18.2) |
Very good | 11 (34.3) | 4 (36.4) |
Good | 12 (37.5) | 3 (27.3) |
Fair | 5 (15.6) | 1 (9.1) |
Poor | 3 (9.4) | 1 (9.1) |
Clinical Characteristics | ||
Age diagnosed with hereditary angioedema | ||
Mean | 20.3 | 23.6 |
Median | 20.5 | 23 |
Min, Max | 1.5-47 | 7-44 |
Type of HAE (n) (%) | ||
Type I | 28 (87.5) | 11 (100) |
Type II | 4 (12.5) | 0 (0) |
Type of most recent attack n (%) | ||
Cutaneous | 14 (43.8) | 5 (45.5) |
Abdominal | 12 (37.5) | 5 (45.5) |
Laryngeal | 2 (6.3) | 0 (0) |
Cutaneous and abdominal | 3 (9.4) | 1 (9) |
Cutaneous, abdominal and laryngeal | 1 (3.3) | 0 (0) |
How were you diagnosed with HAE (n) (%) | ||
General Practitioner | 4 (3.9) | 0 (0)a |
HAE specialist | 14 (43.8) | 5 (45.5) |
Diagnosed because other family members had the condition | 13 (40.6) | 4 (36.6) |
Other: | 1 (3.1) | 0 (0) |
Allergist | 3 (9.4) | 0 (0) |
Gastroenterologist | 1 (3.1) | 0 (0) |
National Institutes of Health (NIH) | 1 (3.1) | 0 (0) |
Immunologist | 1 (3.1) | 0 (0) |
Pediatrician | 1 (3.1) | 0 (0) |
Research clinic | 1 (3.1) | 0 (0) |
Research physician | 0 (0) | 1 (9.1) |
Physician – internist | 0 (0) | 1 (9.1) |
Rheumatologist | 0 (0) | 1 (9.1) |