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Table 2 Proposed core suite of aspects of health to be assessed using PROMs for children and young people with neurodisability

From: Meaningful health outcomes for paediatric neurodisability: Stakeholder prioritisation and appropriateness of patient reported outcome measures

ICF domain

Example areas

Communication

Receiving and producing messages, including conversations and using technology

Emotional Wellbeing

Feelings of contentment, enjoyment, happiness

Pain

General or localised discomfort

Mobility

Moving around and changing locations

Self-care

Diet, exercise, washing, dressing

Independence

Expressing preferences, making choices

Community and social life

Recreation, sports and leisure

Mental Health

Anxiety, mood

Sleep

Onset, duration and quality of sleep

Behaviour

Managing expression of emotions, maintaining social interactions

Safety

Managing risks that lead to injury or harm

Toileting

Managing continence, constipation