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Table 2 Proposed core suite of aspects of health to be assessed using PROMs for children and young people with neurodisability

From: Meaningful health outcomes for paediatric neurodisability: Stakeholder prioritisation and appropriateness of patient reported outcome measures

ICF domain Example areas
Communication Receiving and producing messages, including conversations and using technology
Emotional Wellbeing Feelings of contentment, enjoyment, happiness
Pain General or localised discomfort
Mobility Moving around and changing locations
Self-care Diet, exercise, washing, dressing
Independence Expressing preferences, making choices
Community and social life Recreation, sports and leisure
Mental Health Anxiety, mood
Sleep Onset, duration and quality of sleep
Behaviour Managing expression of emotions, maintaining social interactions
Safety Managing risks that lead to injury or harm
Toileting Managing continence, constipation