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Table 1 Aspects of health used in the prioritising exercise and sources

From: Meaningful health outcomes for paediatric neurodisability: Stakeholder prioritisation and appropriateness of patient reported outcome measures

Cards depicting:

Qualitative work with children and parents

PROMs

Delphi survey with health care professionals

Play

x

x

x

Sport

x

 

x

Independent

x

x

x

Communication

x

x

x

Memory

x

 

x

Concentration

 

x

 

Emotional wellbeing

x

x

x

Fitness and stamina

 

x

x

Breathing

  

x

Learning

x

x

x

Let me decide

x

x

x

Muscle strength

  

x

Moving my body

x

x

x

Manipulating objects

 

x

x

Moving about

x

x

x

Pain

x

x

x

Worried

x

x

 

Personality/confidence and self esteem

x

x

x

Family

x

x

x

Friends

x

x

x

Hearing and seeing

x

x

x

Self care

x

x

x

Eating nutrition

x

x

x

Self care Hygiene

x

x

x

Safety

x

x

x

Sexual health

 

x

x

Sleep

x

x

x

Social life/go out

x

x

x

Continence

x

x

x

Education

x

x

 

Drool, swallowing, constipation

x

 

x

Body structures

x

 

x

Control behaviour

x

 

x

Change body position

  

x

  1. The card depicting “safety” was not printed and therefore not used in the exercise