Table 3 Disease activity, symptoms, functioning and social support at study entry and at one- and two-year follow-ups
From: How are you? Do people with inflammatory bowel disease experience response shift on this question?
Predictor [norm when available] | Study entry | Year 1 follow-up | Year 2 follow-up | |||
|---|---|---|---|---|---|---|
n | Mean (SD) | n | Mean (SD) | n | Mean (SD) | |
SF-36 subscales: scored 0–100, higher scores correspond to better HRQL | ||||||
General health perception [77] | 284 | 54.9 (21.3) | 357 | 53.0 (21.4) | 342 | 56.9 (22.3) |
Physical function [86] | 335 | 81.0 (21.5) | 354 | 82.5 (21.8) | 345 | 83.2 (22.0) |
Role physical [82] | 379 | 69.1 (29.0) | 357 | 75.2 (26.7) | 346 | 77.1 (25.1) |
Bodily pain [76] | 351 | 58.3 (23.8) | 360 | 61.8 (21.7) | 348 | 62.7 (22.1) |
Vitality [66] | 380 | 49.5 (20.8) | 359 | 51.8 (21.8) | 345 | 51.5 (22.8) |
Social function [86] | 381 | 67.4 (27.9) | 358 | 79.5 (24.8) | 347 | 79.2 (23.3) |
Role emotional [84] | 379 | 78.7 (23.1) | 360 | 83.0 (22.2) | 347 | 83.3 (21.2) |
Mental health [78] | 379 | 67.6 (17.3) | 360 | 71.5 (17.3) | 345 | 71.7 (18.4) |
IBDQ subscales: scored 0 to 7, higher scores correspond to better HRQL | ||||||
Bowel symptoms | 364 | 5.3 (1.1) | 350 | 5.4 (1.1) | 343 | 5.5 (1.1) |
Emotional health | 338 | 5.2 (1.1) | 354 | 5.4 (1.1) | 344 | 5.5 (1.0) |
Social function | 346 | 5.9 (1.3) | 336 | 6.1 (1.3) | 336 | 6.2 (1.1) |
Systemic symptoms | 365 | 4.4 (1.3) | 352 | 4.6 (1.3) | 344 | 4.7 (1.3) |
Brief symptom inventory: scaled 0 to 100, higher scores indicate worse symptoms | ||||||
Global | 381 | 13.7 (12.0) | 358 | 12.9 (12.1) | 351 | 12.2 (10.8) |
Somatization | 379 | 17.2 (15.0) | 358 | 16.2 (15.6) | 351 | 14.8 (15.1) |
Somatization excluding nausea | 379 | 15.9 (14.9) | 358 | 14.5 (15.2) | 351 | 13.6 (14.9) |
Obsessive compulsive | 381 | 21.2 (18.1) | 358 | 21.2 (18.9) | 351 | 20.0 (16.4) |
Sensitivity | 381 | 14.7 (17.6) | 358 | 13.4 (16.8) | 352 | 13.1 (16.0) |
Depression | 381 | 15.6 (18.3) | 358 | 12.5 (16.5) | 352 | 12.9 (15.0) |
Anxiety | 380 | 13.3 (14.6) | 358 | 12.8 (14.8) | 352 | 11.3 (13.0) |
Hostility | 381 | 13.0 (13.9) | 358 | 11.8 (12.5) | 351 | 11.1 (11.8) |
Phobic | 379 | 5.1 (10.6) | 358 | 5.1 (12.1) | 351 | 4.0 (9.0) |
Paranoid | 380 | 9.4 (12.8) | 358 | 9.6 (13.8) | 352 | 9.9 (13.9) |
Psychoticism | 381 | 7.0 (11.2) | 358 | 7.1 (11.0) | 351 | 7.6 (11.3) |
MSPSS social support: higher scores correspond to greater support. Total is scored 12–84 | ||||||
Total | 341 | 66.2 (14.1 | 358 | 65.4 (16.1) | 349 | 65.7 (16.5) |
Significant other (1–7) | 346 | 5.8 (1.5) | 358 | 5.8 (1.6) | 349 | 5.8 (1.6) |
Family (1–7) | 374 | 5.6 (1.4) | 359 | 5.5 (1.5) | 351 | 5.5 (1.5) |
Friends (1–7) | 375 | 5.2 (1.5) | 359 | 5.1 (1.5) | 351 | 5.1 (1.6) |
CPSS Stress scale: scored 0–56, higher scores correspond to greater perceived stress | ||||||
CPSS total | 371 | 22.4 (8.2) | 356 | 21.4 (8.5) | 344 | 20.9 (8.7) |