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Table 1 Descriptive profile of residents, family carers and care staff

From: Care staff and family member perspectives on quality of life in people with very severe dementia in long-term care: a cross-sectional study

Variable

Mean (s.d., range) or frequency

RESIDENTS n = 105

 

  Age

Mean 81.47 years (s.d. 8.63, range 56 – 100)

  Gender

72 (69%) female

33 (31%) male

  Ethnicity

104 (99%) white British

1 (1%) white Irish

  Diagnosis

40 (38%) dementia

26 (25%) Alzheimer’s

19 (18%) vascular dementia

6 (6%) mixed Alzheimer’s and vascular

3 (3%) fronto-temporal dementia/Pick’s

1 (1%) CADASIL

10 (9%) not stated

  FAST stage

25 (24%) Stage 6 (2 6a, 2 6b, 4 6c, 2 6d, 15 6e)

80 (76%) Stage 7 (27 7a, 28 7b, 14 7c, 7 7d, 4 7e)

  Psychotropic medication prescribed

73 (70%) yes, 32 (30%) no

    Antipsychotic

40 (38%) yes, 65 (62%) no

    Benzodiazepine

32 (30%) yes, 73 (70%) no

    Hypnotic

29 (28%) yes, 76 (72%) no

    Antidepressant

33 (31%) yes, 72 (69%) no

    Antiepileptic

9 (9%) yes, 96 (91%) no

  Number of medication types prescribed

32 (30%) none

25 (24%)1 type

29 (28%) 2 types

16 (15%) 3 types

3 (3%) 4 types

  Dementia medication prescribed

15 (14%) yes, 90 (86%) no

  Length of stay in the home (months)

Mean 38.69 (s.d. 32.63; range 3 – 223)

FAMILY CARERS n = 105

 

  Relationship to resident

30 (29%) spouse

58 (55%) child

16 (15%) other relative

1 (1%) none (resident had no relatives)

  Frequency of visiting (data available for 73 carers who completed the QUALID)

41 (56%) 1 – 2 times a week

15 (21%) 3 – 4 times a week

 

4 (5%) 5 – 6 times a week

8 (11%) daily

5 (7%) ‘regularly’

CARE STAFF n = 64

 

  Age

Mean 38.16 years (s.d. 9.87, range 21 – 57)

  Gender

51 (80%) female

13 (20%) male

  Ethnicity

43 (67%) UK

6 (10%) EC

15 (23%) other

  First language

44 (69%) English/Welsh

20 (31%) other

  Length of time working in care sector (years)

Mean 8.23 (s.d. 7.65, range 0.17 – 30)

  Length of time working in this home (years)

Mean 4.70 (s.d. 4.86, range 0.17 – 21)

  Qualifications in care provision

12 (19%) no qualifications

3 (5%) NVQ Level 1

19 (31%) NVQ level 2

21 (33%) NVQ Level 3

9 (14%) nursing qualification

  1. Note. FAST: Functional Assessment Staging; CADASIL: Cerebral Autosomal-Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy; QUALID: Quality of Life in Late-stage Dementia scale; UK: United Kingdom; EC: European Community; NVQ: National Vocational Qualification.