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Table 1 Descriptive profile of residents, family carers and care staff

From: Care staff and family member perspectives on quality of life in people with very severe dementia in long-term care: a cross-sectional study

Variable Mean (s.d., range) or frequency
RESIDENTS n = 105  
  Age Mean 81.47 years (s.d. 8.63, range 56 – 100)
  Gender 72 (69%) female
33 (31%) male
  Ethnicity 104 (99%) white British
1 (1%) white Irish
  Diagnosis 40 (38%) dementia
26 (25%) Alzheimer’s
19 (18%) vascular dementia
6 (6%) mixed Alzheimer’s and vascular
3 (3%) fronto-temporal dementia/Pick’s
1 (1%) CADASIL
10 (9%) not stated
  FAST stage 25 (24%) Stage 6 (2 6a, 2 6b, 4 6c, 2 6d, 15 6e)
80 (76%) Stage 7 (27 7a, 28 7b, 14 7c, 7 7d, 4 7e)
  Psychotropic medication prescribed 73 (70%) yes, 32 (30%) no
    Antipsychotic 40 (38%) yes, 65 (62%) no
    Benzodiazepine 32 (30%) yes, 73 (70%) no
    Hypnotic 29 (28%) yes, 76 (72%) no
    Antidepressant 33 (31%) yes, 72 (69%) no
    Antiepileptic 9 (9%) yes, 96 (91%) no
  Number of medication types prescribed 32 (30%) none
25 (24%)1 type
29 (28%) 2 types
16 (15%) 3 types
3 (3%) 4 types
  Dementia medication prescribed 15 (14%) yes, 90 (86%) no
  Length of stay in the home (months) Mean 38.69 (s.d. 32.63; range 3 – 223)
FAMILY CARERS n = 105  
  Relationship to resident 30 (29%) spouse
58 (55%) child
16 (15%) other relative
1 (1%) none (resident had no relatives)
  Frequency of visiting (data available for 73 carers who completed the QUALID) 41 (56%) 1 – 2 times a week
15 (21%) 3 – 4 times a week
  4 (5%) 5 – 6 times a week
8 (11%) daily
5 (7%) ‘regularly’
CARE STAFF n = 64  
  Age Mean 38.16 years (s.d. 9.87, range 21 – 57)
  Gender 51 (80%) female
13 (20%) male
  Ethnicity 43 (67%) UK
6 (10%) EC
15 (23%) other
  First language 44 (69%) English/Welsh
20 (31%) other
  Length of time working in care sector (years) Mean 8.23 (s.d. 7.65, range 0.17 – 30)
  Length of time working in this home (years) Mean 4.70 (s.d. 4.86, range 0.17 – 21)
  Qualifications in care provision 12 (19%) no qualifications
3 (5%) NVQ Level 1
19 (31%) NVQ level 2
21 (33%) NVQ Level 3
9 (14%) nursing qualification
  1. Note. FAST: Functional Assessment Staging; CADASIL: Cerebral Autosomal-Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy; QUALID: Quality of Life in Late-stage Dementia scale; UK: United Kingdom; EC: European Community; NVQ: National Vocational Qualification.