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Table 2 Standardised questionnaires used in IDEAL at Time 1

From: Improving the experience of dementia and enhancing active life - living well with dementia: study protocol for the IDEAL study

Measure

Relating to the person with dementia

Relating to the carer

Capitals, assets and resources

  

Resource Generator - UK

x

x

Lubben Social Network Scale

x

x

Positive Affect Index

x

x

De Jong Gierveld Loneliness Scale

x

x

Mini-IPIP

x

x

Life Orientation Test - Revised

x

x

Rosenberg Self-Esteem Scale

x

x

Generalised Self-Efficacy Scale

x

x

Ryff Scales of Psychological Well-being - Self-Acceptance Subscale

x

 

Philadelphia Geriatric Center Morale Scale - Attitude Toward Own Ageing Subscale

x

 

Social Capital Harmonised Question Set

x

x

Challenges

  

Geriatric Depression Scale

x

 

Center for Epidemiologic Studies Depression Scale - Revised

 

x

Charlson Co-Morbidity Index

x

x

EQ-5D-3L

x

x

Simplified Nutrition Appetite Questionnaire

x

 

General Practice Physical Activity Questionnaire

x

x

Functional Activities Questionnaire

x

 

Dependence Scale

x

 

Decision-making Involvement Scale

x

 

Neuropsychiatric Inventory Questionnaire

x

x

Relative Stress Scale

 

x

Role Captivity

 

x

Modified Social Restriction Scale

 

x

Access to and use of services

  

Client Services Receipt Inventory

x

 

Adaptation

  

Representations and Adjustment to Dementia Index

x

x

Carer Coping - Management of Situation

 

x

Carer Coping - Management of Meaning

 

x

Caregiving Competence Scale

 

x

Positive Aspects of Caregiving

 

x

Living well outcomes

  

WHO-5 Well-being Index

x

x

Satisfaction with Life Scale

x

x

Quality of Life in Alzheimer’s Disease

x

 

Activity and Affect Indicators of Quality of Life

x

 

WHOQOL-BREF

 

x