Table 2 Map of items by scales in IONB-PRO development

IONB1

Incontinence daytime

IONB2

Incontinence nightime

IONB3

Regular micturition

IONB4

Feverish sensation

IONB5

Difficult urinating

IONB6

Difficulty compressing-decompressing IOB

IONB7

Emptying bladder

IONB8

Bothering waking at night

IONB9

Difficulty in light physical activity

IONB10

Fear of being far from toilet

IONB11

Limited in drinking liquids

IONB12

Able to organize time

IONB13

(Avoided public transports)

IONB14

(Less productive on work)

IONB15

Limited activities

3

IONB16

Feeling independent

1

IONB17

Living well with neobladder

1

IONB18

Felt angry

2

x

IONB19

Felt panicking

2

X

IONB20

Felt irritable

2

x

X

IONB21

Felt hopeless

2

x

X

IONB22

Fear that the disease went on

2

x

X

IONB23

Worries for the future

2

X

IONB24

Felt diminished

2

X

IONB25

Losing self-esteem

2

X

IONB26

Slept bad at night

IONB27

Felt tired daytime

3

x

X

IONB28

Waking refreshed in the morning

IONB29

Needed to rest daytime

3

x

IONB30

Get tired easily

3

x

X

IONB31

Less bright in doing things

IONB32

Had to stop doing because of tiredness

IONB33

Support from families

IONB34

Difficult to get on with people

1

IONB35

Avoided leasure activities

1

x

IONB36

Avoided to go out

1

x

X

IONB37

Avoided to stay close to people

1

x

X

IONB38

Felt embarrassed

1

X

IONB39

Felt different

1

x

X

IONB40

Fear in meeting new people

1

X

IONB41

Afraid of being rejected from friends

1

x

IONB42

Avoided physical contacts

1

X

IONB43

Avoided situations of physical intimacy