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Table 2 Characteristics of survey respondents

From: Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks

Characteristic

Percent of respondents

Age

 

  18 to 24

29%

  25 to 34

33%

  35 to 44

20%

  45 to 54

11%

  55 to 64

6%

  65 to 74

1%

Gender

 

  Male

36%

  Female

64%

SCD Type

 

  Sickle Cell Anemia (SS)

64%

  Sickle Hemoglobin C Disease (SC)

21%

  Sickle Beta-Thalassemia Disease (Beta)

10%

  Unspecified Sickle Cell Disease (Other)

5%

How much did your last pain attack (crisis) interfere with your life?

 

  I've never had a pain attack (crisis)

2%

  Not at all, I did everything I usually do

10%

  I had to cut down on some things I usually do

21%

  I could not do most things I usually do

30%

  I could not take care of myself…needed some help…

18%

  I could not take care of myself and needed constant care…

19%

About how long did your most recent pain attack (crisis) last?

 

  I've never had a pain attack (crisis)

2%

  Less than 1 hour

4%

  1 - 12 hours

18%

  13 - 24 hours

8%

  1 - 3 days

22%

  4 - 7 days

25%

  1 - 2 weeks

14%

  More than 2 weeks

7%

Patient rating of severity of pain in last attack (0 to 10)

 

  Mean

7.76

  Standard Deviation

2.27