Characteristic | Percent of respondents |
---|---|
Age | Â |
  18 to 24 | 29% |
  25 to 34 | 33% |
  35 to 44 | 20% |
  45 to 54 | 11% |
  55 to 64 | 6% |
  65 to 74 | 1% |
Gender | Â |
  Male | 36% |
  Female | 64% |
SCD Type | Â |
  Sickle Cell Anemia (SS) | 64% |
  Sickle Hemoglobin C Disease (SC) | 21% |
  Sickle Beta-Thalassemia Disease (Beta) | 10% |
  Unspecified Sickle Cell Disease (Other) | 5% |
How much did your last pain attack (crisis) interfere with your life? | Â |
  I've never had a pain attack (crisis) | 2% |
  Not at all, I did everything I usually do | 10% |
  I had to cut down on some things I usually do | 21% |
  I could not do most things I usually do | 30% |
  I could not take care of myself…needed some help… | 18% |
  I could not take care of myself and needed constant care… | 19% |
About how long did your most recent pain attack (crisis) last? | Â |
  I've never had a pain attack (crisis) | 2% |
  Less than 1 hour | 4% |
  1 - 12 hours | 18% |
  13 - 24 hours | 8% |
  1 - 3 days | 22% |
  4 - 7 days | 25% |
  1 - 2 weeks | 14% |
  More than 2 weeks | 7% |
Patient rating of severity of pain in last attack (0 to 10) | Â |
  Mean | 7.76 |
  Standard Deviation | 2.27 |