Table 1 ASCQ-Me item sets (Health topics) and example questions

Cognitive Impact

In the past 7 days, how often did you have trouble remembering things people had just told you?

Emotional Impact

In the past 7 days, how often were you very worried about needing to go to the hospital?

Physical Impact

In the past 7 days, how often were your joints very stiff during the day?

Social Impact

In the past 30 days, how much did your health make it hard for you to do things with your friends?

Pain Episodes

Using any number from 0 to 10, where 0 is no pain and 10 is the worst imaginable pain, how severe was your pain during your last pain attack (crisis)?