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Table 4 PROMs scores and change by LTC

From: Change in health status in long-term conditions over a one year period: a cohort survey using patient-reported outcome measures

N Baseline mean Follow-up mean Mean change Lower CI (95%) Upper CI (95%) p
Asthma EQ-5D
York A1 tariff 255 0.83 0.84 0.01 0.00 0.02 0.23
VAS 248 73.77 74.33 0.56 −1.09 2.21 0.50
Asthma MINI-AQLQ
Symptoms 252 5.29 5.29 0.00 −0.12 0.12 0.99
Activity Limitations 240 6.08 5.92 −0.15 −0.26 −0.05 0.00
Emotional Functioning 253 5.37 5.28 −0.09 −0.23 0.05 0.21
Environmental Stimuli 255 5.30 5.24 −0.05 −0.17 0.07 0.38
Total QOL 226 5.60 5.52 −0.07 −0.17 0.02 0.13
N Baseline mean Follow-up mean Mean change Lower CI (95%) Upper CI (95%) p
COPD EQ-5D
York A1 tariff 177 0.67 0.67 0.00 −0.02 0.01 0.77
VAS 173 62.29 62.14 −0.14 −2.94 2.66 0.92
COPD CCQ
Symptoms 171 2.60 2.60 0.01 −0.14 0.16 0.92
Functional State 176 2.03 2.14 0.11 −0.03 0.25 0.12
Mental State 174 2.11 2.20 0.10 −0.09 0.29 0.32
Total QOL 160 2.22 2.28 0.06 −0.07 0.19 0.38
N Baseline mean Follow-up mean Mean change Lower CI (95%) Upper CI (95%) p
Diabetes EQ-5D
York A1 tariff 301 0.73 0.72 0.00 −0.01 0.01 0.60
VAS 296 68.16 69.76 1.60 −0.19 3.39 0.08
Diabetes DHP
Psychological distress 301 16.35 16.59 0.24 −1.09 1.57 0.72
Barriers to activity 282 22.17 22.39 0.22 −1.22 1.66 0.76
Disinhibited eating 307 30.16 30.08 −0.09 −1.71 1.54 0.92
N Baseline mean Follow-up mean Mean change Lower CI (95%) Upper CI (95%) p
Epilepsy EQ-5D
York A1 tariff 95 0.76 0.76 0.00 −0.02 0.02 0.89
VAS 91 71.40 73.59 2.20 −0.96 5.36 0.17
Epilepsy QOLIE
Seizure worry 95 64.49 65.32 0.82 −3.05 4.69 0.67
Overall QOL 79 68.26 68.58 0.32 −2.79 3.42 0.84
Emotional well-being 95 67.58 67.24 −0.34 −3.69 3.02 0.84
Energy 98 54.34 51.99 −2.35 −5.18 0.49 0.10
Cognitive 89 63.92 64.69 0.77 −2.18 3.73 0.60
Medication effects 98 62.59 61.65 −0.94 −5.67 3.80 0.70
Social function 53 79.25 79.04 −0.21 −5.14 4.73 0.93
Total QOL 40 69.92 70.13 0.22 −2.93 3.36 0.89
N Baseline mean Follow-up mean Mean change Lower CI (95%) Upper CI (95%) p
Heart failure EQ-5D
York A1 tariff 137 0.64 0.64 0.00 −0.02 0.01 0.62
VAS 145 62.20 58.67 −3.53 −6.69 −0.38 0.03
Heart failure MLHFQ
Total QOL 80 36.91 35.10 −1.81 −4.46 0.84 0.18
Physical dimension 125 18.44 18.02 −0.42 −1.62 0.77 0.48
Emotional dimension 132 7.79 7.48 −0.31 −0.99 0.36 0.36
N Baseline mean Follow-up mean Mean change Lower CI (95%) Upper CI (95%) p
Stroke EQ-5D
York A1 tariff 93 0.67 0.67 −0.01 −0.03 0.01 0.45
VAS 82 73.84 71.96 −1.88 −5.12 1.37 0.25
Stroke SIS
Strength 72 66.75 65.97 −0.78 −5.22 3.66 0.73
Hand function 76 73.22 72.17 −1.05 −3.67 1.57 0.43
Mobility 79 78.83 76.72 −2.11 −4.46 0.24 0.08
Memory 91 81.32 81.04 −0.27 −3.23 2.68 0.85
ADL 80 82.22 79.66 −2.56 −4.48 −0.65 0.01
Communication 92 86.88 85.05 −1.82 −4.26 0.61 0.14
Emotion 77 72.08 71.90 −0.18 −3.56 3.20 0.92
Handicap 48 72.20 72.92 0.72 −3.78 5.21 0.75
Physical dimension 52 78.08 76.35 −1.72 −3.67 0.23 0.08