Table 5 Overview of main themes derived from patient statements associated with the selected PROMIS domain
Selected domain | Main themes | N* |
|---|---|---|
Instrumental support | Description of instrumental support | 11 |
| Â | Autonomy | 2 |
| Â | Coping with instrumental support | 2 |
| Â | Level of importance of instrumental support | 2 |
Fatigue | Description of fatigue | 6 |
| Â | Coping with fatigue | 4 |
| Â | Determinants of fatigue | 3 |
| Â | Consequences of fatigue | 2 |
| Â | Physical activity | 1 |
| Â | Comorbidity leads to misconception | 1 |
| Â | Mobility | 1 |
Ability to participate in social roles and activities | Hobby/Leisure time | 6 |
| Â | Coping with limitations in the ability to participate in social roles and activities | 3 |
| Â | Determinants of the ability to participate in social roles and activities | 2 |
| Â | Restrictions in physical activities | 1 |
| Â | Description of social roles and activities | 1 |
| Â | Level of importance of social roles and activities | 1 |
Companionship | Description social contacts | 10 |
| Â | Pointing out positive results of social contacts | 3 |
| Â | Importance of social contacts | 3 |
| Â | Description social activities | 1 |
| Â | Level of satisfaction with company | 1 |
| Â | Pointing out negative results of social contacts | 1 |
| Â | Life and death | 1 |
Physical function | Experiencing limitation or complaints during physical exertion | 8 |
| Â | Autonomy | 2 |
| Â | Additional factors affecting physical complaints | 1 |
| Â | Fatigue | 1 |
| Â | Level of satisfaction with physical function | 1 |
Emotional support | Description of emotional support | 8 |
| Â | Level of importance of emotional support | 2 |
| Â | Pointing out positive results of emotional support | 2 |
Sleep disturbance | Description of sleep disturbance | 5 |
| Â | Determinants of fatigue | 1 |
| Â | Consequences of stress | 1 |
Sleep related impairment | Coping with problems caused by sleep disturbances | 2 |
| Â | Description of problems caused by sleep disturbances | 1 |
| Â | Comorbidity leads to misconception | 1 |
Satisfaction with participation in social roles and activities | Autonomy | 8 |
| Â | Social life | 1 |
| Â | Description of attitude to life | 1 |
| Â | Determinants of fatigue | 1 |
| Â | Consequences of fatigue | 1 |
| Â | Anger | 1 |
| Â | Level of importance of being independent from others | 1 |
Informational support | Description of informational support | 3 |
Anxiety | Description of anxiety | 4 |
| Â | Consequences of physical complaints | 1 |
Pain interference | Description of pain | 1 |
| Â | Description of limitations due to pain | 1 |
Pain behaviour | Comorbidity leads to misconception | 1 |
Anger | Determinants of anger | 2 |
| Â | Coping with anger | 1 |
| Â | Importance of coping with anger | 1 |
| Â | Description of anger | 1 |
| Â | Autonomy | 1 |