Table 5 Purposes for using outcome measures and factors influencing the choice of an outcome measure in research (multiple answers possible)
From: Implementing patient reported outcome measures (PROMs) in palliative care - users' cry for help
Europe n (%) | Africa n (%) | |
|---|---|---|
Purpose of using outcome measures in research | n = 119 | n = 48 |
To measure/describe patients' symptoms | 90 (75.6%) | 35 (72.9%) |
To measure/describe patients' quality of life | 77 (64.7%) | 40 (83.3%) |
To evaluate the effect of an intervention/care/service | 77 (64.7%) | 36 (79.2%) |
To assess patients' functional status | 71 (59.7%) | 29 (60.4%) |
To monitor changes in patients health status or quality of life | 57 (47.9%) | 32 (66.7%) |
To measure/describe patients' quality of care | 44 (37.0%) | 33 (68.8%) |
To screen whether patients meet inclusion criteria | 37 (31.1%) | 15 (31.3%) |
Factors influencing choice of outcome measures in research | n = 118 | n = 46 |
Validated in palliative care | 80 (67.8%) | 34 (73.9%) |
Comparability with national and/or international literature | 76 (64.4%) | 20 (43.5%) |
Tool previously used in similar setting/patient group | 70 (59.3%) | 24(52.2%) |
Time needed for completion | 64 (54.2%) | 26 (56.5%) |
Existing translation for my language/country | 63 (53.4%) | 18 (39.1%) |
Access to tool | 59 (50.0%) | 30 (65.2%) |
Validated in patient group (e.g. disease) | 59 (50.0%) | 20 (43.5%) |
Own previous experience with a tool | 53 (44.9%) | 15 (32.6%) |
Cost (e.g. fees to use tool) | 23 (19.5%) | 16 (34.8%) |