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Table 3 Reasons for not using outcome measures and circumstances starting using them (multiple answers possible)

From: Implementing patient reported outcome measures (PROMs) in palliative care - users' cry for help

 

Europe n (%)

Africa n (%)

Main reasons for not using outcome measures

n = 201

n = 63

Time constraints

52 (25.9%)

11 (17.5%)

Tools are too burdensome for patients & families

47 (23.4%)

2 (3.2%)

Lack of training about how to use tools

41 (20.4%)

13 (20.6%)

Tools do not reflect the patient's situation

39 (19.4%)

2 (3.2%)

Tools are too burdensome for staff

36 (17.9%)

3 (4.8%)

Lack of guidance about how to use tools

35 (17.4%)

15 (23.8%)

Don't know where to get information about tools

31 (15.4%)

8 (12.7%)

Lack of training about how to analyse data from tools

30 (14.9%)

12 (19.0%)

Not enough staff

30 (14.9%)

7 (11.1%)

Limited access (e.g. registration needed)

13 (6.5%)

2 (3.2%)

Language restriction (e.g. tools not translated)

12 (6.0%)

6 (9.5%)

Cost constraints (e.g. fees for tools)

7 (3.5%)

4 (6.3%)

Lack of validated version for specific setting (e.g. Africa)

4 (2.0%)

10 (15.9%)

Circumstances to start use of outcome measures

n = 192

n = 52

If more information and guidance were provided about tools

86 (44.8%)

26 (50.0%)

If more training was provided

58 (30.2%)

20 (38.5%)

If I had more time

56 (29.2%)

10 (19.2%)

If appropriate tools were available (e.g. translations)

42 (21.9%)

22 (42.3%)

If I had more staff

42 (21.9%)

7 (13.5%)

I don't think I would ever use tools

16 (8.3%)

0 (.0%)

If I had more money

9 (4.7%)

6 (11.5%)