From: Implementing patient reported outcome measures (PROMs) in palliative care - users' cry for help
Europe n (%) | Africa n (%) | |
---|---|---|
Main reasons for not using outcome measures | n = 201 | n = 63 |
Time constraints | 52 (25.9%) | 11 (17.5%) |
Tools are too burdensome for patients & families | 47 (23.4%) | 2 (3.2%) |
Lack of training about how to use tools | 41 (20.4%) | 13 (20.6%) |
Tools do not reflect the patient's situation | 39 (19.4%) | 2 (3.2%) |
Tools are too burdensome for staff | 36 (17.9%) | 3 (4.8%) |
Lack of guidance about how to use tools | 35 (17.4%) | 15 (23.8%) |
Don't know where to get information about tools | 31 (15.4%) | 8 (12.7%) |
Lack of training about how to analyse data from tools | 30 (14.9%) | 12 (19.0%) |
Not enough staff | 30 (14.9%) | 7 (11.1%) |
Limited access (e.g. registration needed) | 13 (6.5%) | 2 (3.2%) |
Language restriction (e.g. tools not translated) | 12 (6.0%) | 6 (9.5%) |
Cost constraints (e.g. fees for tools) | 7 (3.5%) | 4 (6.3%) |
Lack of validated version for specific setting (e.g. Africa) | 4 (2.0%) | 10 (15.9%) |
Circumstances to start use of outcome measures | n = 192 | n = 52 |
If more information and guidance were provided about tools | 86 (44.8%) | 26 (50.0%) |
If more training was provided | 58 (30.2%) | 20 (38.5%) |
If I had more time | 56 (29.2%) | 10 (19.2%) |
If appropriate tools were available (e.g. translations) | 42 (21.9%) | 22 (42.3%) |
If I had more staff | 42 (21.9%) | 7 (13.5%) |
I don't think I would ever use tools | 16 (8.3%) | 0 (.0%) |
If I had more money | 9 (4.7%) | 6 (11.5%) |