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Table 1 European Palliative Care Associations participating in the online survey

From: Implementing patient reported outcome measures (PROMs) in palliative care - users' cry for help

Country

Association

No. of members

Sample

Belgium

FPCF

Federatie Palliatieve Zorg Vlaanderen

About 200 (mixed individuals & organisations)

33%

 

FWSP

Fédération Wallonne des Soins Palliatifs

  

Germany

DGP

Deutsche Gesellschaft für Palliativmedizin e.V.

3,100

20%

Italy

SICP

Società Italiana di Cure Palliative

2,454 (1092 doc, 829 nurse, 375 other = 2,296)

20%

Nether-land

NPTN

Netherlands Palliative Care Network for Terminally Ill Patients

102 (mixed including organisations)

33%

Norway

NFPM

Norwegian Association for Palliative Medicine

112 (only physicians)

33%

Portugal

APCP

Portuguese Association of Palliative Care

406

33%

Spain

SCBCP

Soc. Catalano-Balear de Cures Palliatives

360

33%

 

SECPAL

Sociedad Española de Cuidados Paliativos

1500

20%

UK

APM

Association for Palliative Medicine of Great Britain & Ireland

1,030 (only physicians)

20%

 

APCSW

Association of Palliative Care Social Workers

309 (only social workers)

33%

 

RCN

Royal College of Nursing - Palliative Nursing Group

3,196 (only nurses)

No sampling possible#

  

UK Nurse consultants

28

100%

Other contacts

POS database

Department of Palliative Care, Policy & Rehabilitation, KCL

211

100%

 

POS & STAS authors

Systematic review of literature

61

100%

 

Pall care academics in Europe

Chairs & other researchers in palliative medicine in Europe

61

100%

 

PRISMA members

 

38

100%

  1. # invitation letter sent to all and request for link to survey demanded