No
|
45
|
86.5%
|
Yes
|
7
|
13.5%
|
How did you feel during the interval before diagnosis?
| | |
Worried, frightened
|
25
|
48.1%
|
Depressed, desperate, overwhelmed by disease
|
12
|
23.1%
|
Misunderstood, not taken seriously, angry
|
9
|
17.3%
|
Normal, matter of fact
|
6
|
11.5%
|
How did your environment react?
| | |
Worried, startled
|
15
|
28.9%
|
Helpful, empathic, supportive
|
21
|
38.5%
|
Empathy at first, later less
|
2
|
3.9%
|
Normal, no empathy, unbelief
|
10
|
19.2%
|
Patient did not tell environment about disease
|
4
|
7.7%
|
Did your environment support you?
| | |
Never
|
3
|
5.8%
|
Sometimes, little support
|
5
|
9.6%
|
Gave much support
|
24
|
46.2%
|
Support only from close family
|
17
|
32.7%
|
Patient did not need support
|
3
|
5.8%
|
What was the extent of the received support?
| | |
No support
|
6
|
11.5%
|
Little support, sometimes support
|
13
|
25.0%
|
Much support
|
33
|
63.5%
|
Did others doubt that you were ill?
| | |
Never, always taken seriously
|
23
|
44.2%
|
No doubt in close environment, rest doubted
|
12
|
23.1%
|
Doubt, did not think complaints were important
|
13
|
25.0%
|
Patient did not consider herself ill
|
1
|
1.9%
|
Environment did not know about disease
|
3
|
5.8%
|
Did you yourself sometimes doubt that you were ill?
| | |
No
|
43
|
82.7%
|
Sometimes
|
9
|
17.3%
|
Did others think your complaints were psychological, "all in the mind"?
| | |
No
|
35
|
67.3%
|
Yes, disease was psychological
|
15
|
28.8%
|
Affectation
|
2
|
3.8%
|
Did you yourself think that your complaints were psychological, "all in the mind"?
| | |
No
|
41
|
78.8%
|
Sometimes
|
11
|
21.2%
|
Did you sometimes feel guilty about your illness?
| | |
No
|
31
|
59.6%
|
Sometimes
|
3
|
5.8%
|
Often
|
18
|
34.6%
|
Were you sometimes not taken seriously by health-care providers?
| | |
No, always taken seriously
|
17
|
32.7%
|
Yes, by General Practitioner (GP)
|
13
|
25.0%
|
Yes, by some doctors (GP or specialist)
|
19
|
36.5%
|
Yes, by hospital staff
|
3
|
5.8%
|
How often were you not taken seriously by health-care providers?
| | |
Never
|
17
|
32.7%
|
Sometimes
|
27
|
51.9%
|
Often
|
8
|
15.4%
|