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Table 1 Subject Characteristics

From: Development of the Japanese version of the Pediatric Quality of Life Inventory™ Brain Tumor Module

  Number of respondents (n) % of total Median
(years)
Range
(years)
Age 166 100 10.0 2 - 18
Sex     
   Male 91 55.2   
   Female 74 44.8   
Tumor Pathology     
   Embryonal tumors 47 29.0   
   Germ cell tumors 36 22.2   
   High-grade glioma 25 15.4   
   Low-grade glioma 39 24.1   
   Other 15 9.3   
Time from diagnosis 165 99.4 2.4 0.1 - 16.8
Period     
   Inpatients 42 25.3   
   Outpatients on treatment 23 13.9   
   Outpatients with scheduled follow-up 99 59.6   
   Outpatients without scheduled follow-up 2 1.2   
Medical history     
   Cancer 3 1.8   
   Heart disease 4 2.4   
   Neurofibromatosis 2 1.2   
Treatment received     
   None 5 3.0   
   Surgery (S) 23 13.9   
   Radiation (R) 1 0.6   
   Chemotherapy (C) 4 2.4   
   S+R 16 9.6   
   S+C 24 14.5   
   R+C 5 3.0   
   S+R+C 88 53.0   
Have experience with stem cell transplantation
   Yes 17 10.2   
   No 149 89.8   
Have experience with whole brain irradiation
   Yes 60 36.1   
   No 106 63.9   
Age at whole brain irradiation 60 36.1 7.0 0 - 18
Time since whole brain irradiation 60 36.1 2.8 0.0 - 14.8
Subjective opinion regarding own economic status and life
   Affluent 60 36.6   
   Not affluent 104 63.4   
Relationship of parent to child
   Mother 153 92.2   
   Father 10 6.0   
   Grandmother 2 1.2   
   Grandfather 1 0.6   
Academic background of parents
   Junior high school 3 1.8   
   High school 64 39.3   
   Vocational school 28 17.2   
   Junior college 29 17.8   
   University (undergraduate) 36 22.1   
   University (graduate) 3 1.8   
  1. Total (n) = 166
  2. Missing data were excluded.