Table 1 Subject Characteristics
From: Development of the Japanese version of the Pediatric Quality of Life Inventory™ Brain Tumor Module
Number of respondents (n) | % of total | Median (years) | Range (years) | |
|---|---|---|---|---|
Age | 166 | 100 | 10.0 | 2 - 18 |
Sex | ||||
Male | 91 | 55.2 | ||
Female | 74 | 44.8 | ||
Tumor Pathology | ||||
Embryonal tumors | 47 | 29.0 | ||
Germ cell tumors | 36 | 22.2 | ||
High-grade glioma | 25 | 15.4 | ||
Low-grade glioma | 39 | 24.1 | ||
Other | 15 | 9.3 | ||
Time from diagnosis | 165 | 99.4 | 2.4 | 0.1 - 16.8 |
Period | ||||
Inpatients | 42 | 25.3 | ||
Outpatients on treatment | 23 | 13.9 | ||
Outpatients with scheduled follow-up | 99 | 59.6 | ||
Outpatients without scheduled follow-up | 2 | 1.2 | ||
Medical history | ||||
Cancer | 3 | 1.8 | ||
Heart disease | 4 | 2.4 | ||
Neurofibromatosis | 2 | 1.2 | ||
Treatment received | ||||
None | 5 | 3.0 | ||
Surgery (S) | 23 | 13.9 | ||
Radiation (R) | 1 | 0.6 | ||
Chemotherapy (C) | 4 | 2.4 | ||
S+R | 16 | 9.6 | ||
S+C | 24 | 14.5 | ||
R+C | 5 | 3.0 | ||
S+R+C | 88 | 53.0 | ||
Have experience with stem cell transplantation | ||||
Yes | 17 | 10.2 | ||
No | 149 | 89.8 | ||
Have experience with whole brain irradiation | ||||
Yes | 60 | 36.1 | ||
No | 106 | 63.9 | ||
Age at whole brain irradiation | 60 | 36.1 | 7.0 | 0 - 18 |
Time since whole brain irradiation | 60 | 36.1 | 2.8 | 0.0 - 14.8 |
Subjective opinion regarding own economic status and life | ||||
Affluent | 60 | 36.6 | ||
Not affluent | 104 | 63.4 | ||
Relationship of parent to child | ||||
Mother | 153 | 92.2 | ||
Father | 10 | 6.0 | ||
Grandmother | 2 | 1.2 | ||
Grandfather | 1 | 0.6 | ||
Academic background of parents | ||||
Junior high school | 3 | 1.8 | ||
High school | 64 | 39.3 | ||
Vocational school | 28 | 17.2 | ||
Junior college | 29 | 17.8 | ||
University (undergraduate) | 36 | 22.1 | ||
University (graduate) | 3 | 1.8 | ||