Table 3 Reported importance of parent's concerns due to child's chronic disease
Parents' reported concerns | Percent of respondents 1) | Mean scores 2) | SD | Min | Max |
|---|---|---|---|---|---|
Experience anxiety due to child's chronic disease | 100 | 4.9 | 0.2 | 4 | 5 |
Worried or concerned about child's future, due to their disease | 100 | 4.9 | 0.2 | 4 | 5 |
Giving up meeting friends because of child's disease | 100 | 4.7 | 0.5 | 4 | 5 |
Feeling depressed because of child's disease | 100 | 4.8 | 0.4 | 4 | 5 |
Experience anxiety due to child's disease/symptoms | 100 | 4.8 | 0.4 | 4 | 5 |
Struggling to find time to spend with other family members (spouse, another child) because of child's disease | 95.4 | 4.7 | 0.5 | 4 | 5 |
Limitation in attention given to other family members | 95.4 | 4.7 | 0.5 | 4 | 5 |
Feeling guilty due to child's disease | 7.7 | 4.6 | 1.1 | 3 | 5 |
Impact of diesase on own or family's financial situation | 27.7 | 3.5 | 1.1 | 2 | 5 |
Limitations in work related activities | 75.4 | 4.5 | 0.5 | 4 | 5 |
Refrained from hobbies/entertainment because of child's disease | 86.1 | 4.6 | 0.5 | 4 | 5 |
Limitations in household activities (housework, shopping, cleaning) | 87.7 | 4.7 | 0.5 | 4 | 5 |
Feeling shame as the result of child's disease | 3.1 | 5 | 0.0 | 5 | 5 |