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Table 3 Reported importance of parent's concerns due to child's chronic disease

From: Development, evaluation and validation of a new instrument for measurement quality of life in the parents of children with chronic disease

Parents' reported concerns Percent of respondents 1) Mean scores 2) SD Min Max
Experience anxiety due to child's chronic disease 100 4.9 0.2 4 5
Worried or concerned about child's future, due to their disease 100 4.9 0.2 4 5
Giving up meeting friends because of child's disease 100 4.7 0.5 4 5
Feeling depressed because of child's disease 100 4.8 0.4 4 5
Experience anxiety due to child's disease/symptoms 100 4.8 0.4 4 5
Struggling to find time to spend with other family members (spouse, another child) because of child's disease 95.4 4.7 0.5 4 5
Limitation in attention given to other family members 95.4 4.7 0.5 4 5
Feeling guilty due to child's disease 7.7 4.6 1.1 3 5
Impact of diesase on own or family's financial situation 27.7 3.5 1.1 2 5
Limitations in work related activities 75.4 4.5 0.5 4 5
Refrained from hobbies/entertainment because of child's disease 86.1 4.6 0.5 4 5
Limitations in household activities (housework, shopping, cleaning) 87.7 4.7 0.5 4 5
Feeling shame as the result of child's disease 3.1 5 0.0 5 5
  1. 1) percentage of parents who rated the concern as relevant
  2. 2) 5-point scales used (1:not important to 5:very important)