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Table 1 QLCCDQ - examples of questions

From: Development, evaluation and validation of a new instrument for measurement quality of life in the parents of children with chronic disease

Domains

        

Symptoms

        
 

Did the child show any worrying symptoms?

  

All the time

Most of the time

Often

Sometime

Seldom

Very seldom

Never

Emotions

        
 

Have you experienced anxiety because of your child's health problems?

  

All the time

Most of the time

Often

Sometimes

Seldom

Very seldom

Never

Role functioning

        

Social

        
 

Please indicate how much you have been limited by your child's disease in listed activities in past two weeks - Social activities (going to church, cinema, visiting friends)

  

Extremely limited

Very limited

Quite limited

Moderately limited

Somewhat limited

Hardly limited

Not limited

Occupational

        
 

Please indicate how much you have been limited by your child's disease in work related activities in past two weeks

  

Extremely limited

Very limited

Quite limited

Moderately limited

Somewhat limited

Hardly limited

Not limited

Family

        
 

Do you struggle to find time to spend with other family members (spouse, another child) because of your child' disease?

  

Extremely limited

Very limited

Quite limited

Moderately limited

Somewhat limited

Hardly limited

Not limited

Scaling for answers (points)

1

2

3

4

5

6

7