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Table 7 Frequencies of ICF/ICF-CY categories addressed in the different haemophilia-specific PROs in the component 'Activities and Participation'.

From: Content comparison of haemophilia specific patient-rated outcome measures with the international classification of functioning, disability and health (ICF, ICF-CY)

Codes

Children

Adults

 

Haemo-QoL

Haem-A-QoL

MedTap

Hemo-Sat A

HEP-Test-Q

d161

DIRECTING ATTENTION

1*

    

d230

CARRYING OUT DAILY ROUTINE

1

1

2

2

 

d4

MOBILITY

1

1

   

d430

LIFTING AND CARRYING OBJECTS

    

1

d4300

Lifting

  

1

  

d4302

Carrying in the arms

    

1

d450

WALKING

  

1

 

1

d4501

Walking long distances

1

1

  

1

d4502

Walking on different surfaces

    

1

d4551

Climbing

  

1

 

4

d5

SELF-CARE

 

1

   

d570

LOOKING AFTER ONE'S HEALTH

1

  

1

 

d5702

Maintaining one's health

4

3

 

2

 

d6

DOMESTIC LIFE

  

2

  

d7

INTERPERSONAL INTERACTIONS AND RELATIONSHIPS

1*

    

d710

BASIC INTERPERSONAL INTERACTIONS

1*

    

d740

FORMAL RELATIONSHIPS

1

  

2

 

d750

INFORMAL SOCIAL RELATIONSHIPS

    

1

d7500

Informal relationships with friends

4

 

1

  

d7504

Informal relationships with peers

1*

    

d760

FAMILY RELATIONSHIPS

1

 

1

  

d7600

Parent-child relationships

 

1

   

d770

INTIMATE RELATIONSHIPS

2

3

1

  

d820

SCHOOL EDUCATION

4

4

2

1

 

d830

HIGHER EDUCATION

 

4

   

d835

SCHOOL LIFE AND RELATED ACTIVITIES

3*

    

d8450

Seeking employment

  

1

  

d8451

Maintaining a job

  

1

  

d850

REMUNERATIVE EMPLOYMENT

 

4

2

1

 

d880

ENGAGEMENT IN PLAY

1*

    

d9

COMMUNITY, SOCIAL AND CIVIC LIFE

    

1

d920

RECREATION AND LEISURE

1

2

2

2

 

d9201

Sports

4

3

1

3

1

d9202

Arts and culture

  

1

  

d9205

Socializing

  

1

  

TOTAL

33

28

21

14

12

  1. * Category only included in the paediatric Haemo-QoL instrument