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Table 5 Frequencies of ICF/ICF-CY categories addressed in the different haemophilia-specific PROs in the component 'Body Functions'.

From: Content comparison of haemophilia specific patient-rated outcome measures with the international classification of functioning, disability and health (ICF, ICF-CY)

CODES

CHILDREN

ADULTS

 

Haemo-QoL

Haem-A-QoL

MedTap

Hemo-Sat A

HEP-Test-Q

b1265

Optimism

3

2

2

  

b1266

Confidence

  

1

 

2

b1300

Energy Level

    

1

b140

ATTENTION FUNCTIONS

 

1

   

b1400

Sustaining attention

1*

    

b1401

Shifting attention

 

1

   

b152

EMOTIONAL FUNCTIONS

12

10

15

5

 

b1801

Body image

2

1

  

3

b280

SENSATION OF PAIN

3

1

1

 

2

b2801

Pain in body part

 

1

   

b28016

Pain in joints

1

2

   

b430

HAEMATOLOGICAL SYSTEM FUNCTIONS

1*

    

b4303

Clotting functions

 

3

2

4

 

b455

EXERCISE TOLERANCE FUNCTIONS

    

5

b4551

Aerobic capacity

    

1

b7

Neuromusculoskeletal And Movement Related Functions

    

2

b710

MOBILITY OF JOINT FUNCTIONS

1

 

1

  

b7101

Mobility of several joints

1*

    

b730

MUSCLE POWER FUNCTIONS

    

1

TOTAL

25

22

22

9

17

  1. * Category only included in the paediatric Haemo-QoL instrument