Table 4 HRQoL of adolescents with SCD aged 12-18 compared to age matched healthy siblings and Dutch norm population of the KIDSCREEN-52
Children with SCD (n = 23) | Healthy siblings (n = 17) | SCD versus healthy siblings | Norm population (n = 1270) | SCD versus norm population | ||||
|---|---|---|---|---|---|---|---|---|
Mean | SD | Mean | SD | Effect size | Mean | SD | Point estimate of mean difference (95% CI) | |
Physical Well-being | 48 | 8.0 | 50 | 9.5 | 0.2 | 50 | 9.4 | -2 (-6; +2) |
Psychological Well-being | 51 | 9.5 | 53 | 9.7 | 0.2 | 52 | 8.4 | -1 (-5; +3) |
Moods & Emotions | 48 | 7.2 | 46 * | 7.4 | 0.3 | 51 | 9.6 | -3 (-7; +1) |
Self-Perception | 54 | 9.2 | 52 | 10.9 | 0.2 | 50 | 9.3 | 4 (0; +8) |
Autonomy | 47 † * | 9.0 | 53 | 9.5 | 0.7 | 54 | 9.1 | -7 (-11; -3) |
Parent Relation | 51 | 10.2 | 49 | 11.0 | 0.2 | 52 | 9.3 | -1 (-5; +3) |
Financial Resources | 50 | 7.8 | 50 | 7.0 | 0 | 53 | 9.2 | -3 (-7; +1) |
Social Support & Peers | 48 | 10.8 | 53 | 10.4 | 0.5 | 52 | 9.4 | -4 (-8; 0) |
School Environment | 53 | 8.8 | 49 | 6.4 | 0.5 | 51 | 8.7 | 2 (-2; +6) |
Bullying | 48 | 11.6 | 49 | 10.5 | 0.1 | 49 | 10.1 | -1 (-5; +3) |