Skip to main content

Table 1 Characteristics of the patients

From: Health-related quality of life in children with cystic fibrosis: validation of the German CFQ-R

  Whole sample
n = 136
Test-retest sample
n = 20 (subgroup)
Benchmarking population n = 293
Age of the child in years (mean) 10.2 (SD 1.9)
(range 6-13)
9.6 (SD 2.6)
(range 6-13)
9.8 (SD 2.3)
(range 6-13)
FEV1 (mean) 86% (SD 19)
(range 31-125)
81% (SD 21)
(range 41-109)
94% (SD 20)
(range 31-159)
Percentage of children with FEV1>80% 68% 50% 80%
WH (mean) 97% (SD 12)
(range 68-141)
94% (SD 9)
(range 78-108)
99% (SD 12)
(range 68-146)
Percentage of children with WH >90% 74% 65% 80%
Boys 55% 75% 49%
Mother completing CFQ-R-Parent 71% 85%  
Father completing CFQ-R-Parent 27% 15%  
Other person completing CFQ-R-Parent 1% -  
  1. FEV1 forced expiratory volume in one second in % predicted
  2. WH weight for height in % predicted
  3. Benchmarking population: Population of children with cystic fibrosis assessed in a project that was initiated to improve the quality of care for patients in Germany. The project was described by Stern et al. [2]