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Table 1 Demographic Characteristics of the Sample

From: A psychometric evaluation of the PedsQL™ Family Impact Module in parents of children with sickle cell disease

  Parents of SCD children (N = 97) Parents of Control children (N = 73) p-value
Characteristics of the Parents    
Age (yrs), median (P25, P75) 37.1 (31.1,40.9) 29.2 (25.9, 35.0) <0.001
Gender N (%) N (%)  
   Male 7 (7.2) 6 (8.2) 0.967
   Female 89 (91.8) 66 (90.4)  
   Not Reported 1 (1.0) 1 (1.4)  
Type of Caregiver    
   Biological parent 85 (87.6) 55 (75.3) 0.681
   Step parent 0 (0.0) 1 (1.4)  
   Foster parent 0 (0.0) 0 (0.0)  
   Adoptive parent 2 (2.1) 1 (1.4)  
   Guardian 6 (6.2) 7 (9.6)  
   Other 2 (2.1) 1 (1.4)  
   Not Reported 2 (2.1) 8 (11.0)  
Race/Ethnicity    
   African-American 60 (61.9) 50 (68.5) 0.010
   Other 3 (3.1) 14 (19.2)  
   Not Reported 34 (35.1) 9 (12.3)  
Family Income    
   < $20 K 37 (38.1) 34 (46.6) 0.032
   ≥ $20 K but <$40 K 24 (24.7) 13 (17.8)  
   ≥ $40 K 21 (21.7) 5 (6.9)  
   Not Reported 15 (15.5) 21 (28.8)  
Marital Status    
   Married 23 (23.7) 21 (28.8) 0.604
   Not Currently Married 62 (62.9) 44 (60.3)  
   Not Reported 12 (12.4) 8 (11.0)  
Highest Education Level    
   Some High School or less 20 (20.6) 28 (38.4) 0.0315
   High School diploma/GED 29 (29.9) 12 (16.4)  
   Vocational/some college 31 (32.0) 24 (32.9)  
   College/graduate degree 8 (8.3) 3 (4.1)  
   Not Reported 9 (9.3) 6 (8.2)  
Work Status    
   Working 56 (57.7) 10 (13.7) <0.001
   Not Working 31 (32.0) 56 (76.7)  
   Not Reported 10 (10.3) 7 (9.6)  
Characteristics of Children    
Age (yrs), median (P25, P75) 10.0 (5.0, 14.0) 7.0 (3.0, 11.0) 0.005
Gender    
   Female 52 (53.6) 41 (56.2) 0.740
Medical Co-morbidities    
   Any 27 (27.8) 34 (46.6) 0.012
   Asthma 20 (20.6) 27 (37.0)  
   Chronic Allergies 6 (6.2) 11 (15.1)  
   Diabetes 1 (1.0) 1 (1.4)  
   Chronic Orthopaedic, Bone, or Joint Problems 8 (8.3) 3 (4.1)  
   Epilepsy 4 (4.1) 1 (1.4)  
   Rheumatic Disease 1 (1.0) 0 (0.0)  
   Other 2 (2.1) 4 (5.5)  
Neuro-behavioral Co-morbidities    
   Any 38 (39.2) 34 (46.6) 0.334
   Anxiety Problems 6 (6.2) 9 (12.3)  
   Attentional Problems 22 (22.7) 17 (23.3)  
   Behavioral Problems 19 (19.6) 17 (23.3)  
   Depression 7 (7.2) 6 (8.2)  
   Developmental Delay or Mental Retardation 4 (36.4) 7 (63.6)  
   Learning Problems 21 (21.7) 14 (19.2)  
   Speech Problems 9 (9.3) 10 (13.7)  
Sickle Cell Disease Status    
   Mild disease 44 (45.5) NA  
   Severe disease 53 (54.6) NA  
  1. P25 and P75: 25% and 75% percentile