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Table 1 Demographic Characteristics of the Sample

From: A psychometric evaluation of the PedsQL™ Family Impact Module in parents of children with sickle cell disease

 

Parents of SCD children (N = 97)

Parents of Control children (N = 73)

p-value

Characteristics of the Parents

   

Age (yrs), median (P25, P75)

37.1 (31.1,40.9)

29.2 (25.9, 35.0)

<0.001

Gender

N (%)

N (%)

 

   Male

7 (7.2)

6 (8.2)

0.967

   Female

89 (91.8)

66 (90.4)

 

   Not Reported

1 (1.0)

1 (1.4)

 

Type of Caregiver

   

   Biological parent

85 (87.6)

55 (75.3)

0.681

   Step parent

0 (0.0)

1 (1.4)

 

   Foster parent

0 (0.0)

0 (0.0)

 

   Adoptive parent

2 (2.1)

1 (1.4)

 

   Guardian

6 (6.2)

7 (9.6)

 

   Other

2 (2.1)

1 (1.4)

 

   Not Reported

2 (2.1)

8 (11.0)

 

Race/Ethnicity

   

   African-American

60 (61.9)

50 (68.5)

0.010

   Other

3 (3.1)

14 (19.2)

 

   Not Reported

34 (35.1)

9 (12.3)

 

Family Income

   

   < $20 K

37 (38.1)

34 (46.6)

0.032

   ≥ $20 K but <$40 K

24 (24.7)

13 (17.8)

 

   ≥ $40 K

21 (21.7)

5 (6.9)

 

   Not Reported

15 (15.5)

21 (28.8)

 

Marital Status

   

   Married

23 (23.7)

21 (28.8)

0.604

   Not Currently Married

62 (62.9)

44 (60.3)

 

   Not Reported

12 (12.4)

8 (11.0)

 

Highest Education Level

   

   Some High School or less

20 (20.6)

28 (38.4)

0.0315

   High School diploma/GED

29 (29.9)

12 (16.4)

 

   Vocational/some college

31 (32.0)

24 (32.9)

 

   College/graduate degree

8 (8.3)

3 (4.1)

 

   Not Reported

9 (9.3)

6 (8.2)

 

Work Status

   

   Working

56 (57.7)

10 (13.7)

<0.001

   Not Working

31 (32.0)

56 (76.7)

 

   Not Reported

10 (10.3)

7 (9.6)

 

Characteristics of Children

   

Age (yrs), median (P25, P75)

10.0 (5.0, 14.0)

7.0 (3.0, 11.0)

0.005

Gender

   

   Female

52 (53.6)

41 (56.2)

0.740

Medical Co-morbidities

   

   Any

27 (27.8)

34 (46.6)

0.012

   Asthma

20 (20.6)

27 (37.0)

 

   Chronic Allergies

6 (6.2)

11 (15.1)

 

   Diabetes

1 (1.0)

1 (1.4)

 

   Chronic Orthopaedic, Bone, or Joint Problems

8 (8.3)

3 (4.1)

 

   Epilepsy

4 (4.1)

1 (1.4)

 

   Rheumatic Disease

1 (1.0)

0 (0.0)

 

   Other

2 (2.1)

4 (5.5)

 

Neuro-behavioral Co-morbidities

   

   Any

38 (39.2)

34 (46.6)

0.334

   Anxiety Problems

6 (6.2)

9 (12.3)

 

   Attentional Problems

22 (22.7)

17 (23.3)

 

   Behavioral Problems

19 (19.6)

17 (23.3)

 

   Depression

7 (7.2)

6 (8.2)

 

   Developmental Delay or Mental Retardation

4 (36.4)

7 (63.6)

 

   Learning Problems

21 (21.7)

14 (19.2)

 

   Speech Problems

9 (9.3)

10 (13.7)

 

Sickle Cell Disease Status

   

   Mild disease

44 (45.5)

NA

 

   Severe disease

53 (54.6)

NA

 
  1. P25 and P75: 25% and 75% percentile