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Table 7 Items and responses modalities

From: Development and validation of a French patient-based health-related quality of life instrument in kidney transplant: the ReTransQoL

Item number

Items label

Response modalities

1

Have you had physical pain?

All most time

2

Has your graft bothered you?

Most of time

3

Have you felt tired?

A good bit of the time

4

Do you engage in physical exercise?

Some of the time

5

Do you feel energetic?

A little of the time

  

None of time

6

You are as well as anyone else

Definitely agree

7

You have stopped doing certain things.

Mostly agree

8

You feel autonomous.

Not agree not disagree

9

You can do your housework and errands by yourself.

Mostly disagree

  

Definitely disagree

10

Do you feel physically affected?

 

11

Are you annoyed by the side effects of treatment?

 

12

Is your weight a problem for you?

 

13

Do you feel relieved?

 

14

Do you feel sick?

No at all

15

Have you been able to forget that you received a graft?

A little bit

16

Do you often think about your graft?

Moderately

17

Are you satisfied with your graft?

Quite a bit

18

Does your family offer you moral support?

Extremely

19

Has your family accepted your illness?

 

20

Do you feel misunderstood by the people around you?

 

21

Do you feel close to your friends?

 

22

Do you feel sad?

 

23

Have you enjoyed life as much as possible?

 

24

Do you feel discouraged?

All most time

25

Are you able to put up with daily worries and stress?

Most of time

26

Do you feel isolated?

A good bit of the time

27

Are you anxious about your state of health?

Some of the time

28

Does waiting for the results of medical tests distress you or make you feel scared?

A little of the time

29

Do you think about a possible return to dialysis?

None of time

30

Do you still sometimes think about dialysis?

 

31

You would say that you have a normal life.

Definitely agree

32

You live with the graft as if you have a second life, a rebirth.

Mostly agree

33

Do you think you will have enough income to provide for your needs?

Not agree not disagree

  

Mostly disagree

  

Definitely disagree

34

Do you have hobbies/leisure activities?

All most time

  

Most of time

  

A good bit of the time

  

Some of the time

  

A little of the time

  

None of time

35

Is taking medications a constraint for you?

 

36

Are you scared of the possible side effects of the anti-rejection treatment?

 

37

Are your doctor's orders restrictive?

 

38

Do you trust your nephrologist?

 

39

Do you have trust in the prescribed treatments?

 

40

Are you satisfied by your nephrologist's ability to listen?

No at all

41

Do you feel sufficiently informed by your nephrologist?

A little bit

42

Do you feel like you are sufficiently informed about the side effects of your treatments?

Moderately

43

Do you feel like you are sufficiently informed about complications of the graft?

Quite a bit

44

Do you feel supported by the medical team?

Extremely

45

Are you satisfied by your medical follow-up?