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Table 1 Characteristics of Focus Group and Interview Participants (n = 38)

From: Exploring disability from the perspective of adults living with HIV/AIDS: Development of a conceptual framework

Characteristic Number (%)
Gender  
   Male 21 (55%)
   Female 16 (42%)
   Transgendered 1 (3%)
Age 41 years old (range: 27–58 years)
Identified with particular ethnic group 23 (60%)**
Nadir CD4 count < 200 cells/mm3 19 (50%)
Diagnosed Prior to 1996 17 (45%)
Experienced an HIV-related illness 11 (73%)*†
Currently Taking HIV Medications 25 (66%)
Currently Working 6 (40%)* (3 full-time, 3 part-time)
Self Rated Health Status  
   Poor 0 (0%)
   Fair 2 (5%)
   Good 16 (42%)
   Very Good 15 (39%)
   Excellent 5 (14%)
HIV Symptom Index  
   Median Number of Symptoms Present 15/20 (IQR: 8–18)
   Median Number of Bothersome Symptoms 13/20 (IQR: 8–18)^
  1. *denominator of 15 interview participants only
  2. **13 identified themselves as African/African Caribbean/Black African/Black; 2 Jewish; 1 West Indian; 1 Latin; 1 Italian Canadian; 1 Irish Canadian; 1 French Italian; 1 English British; 1 White Caucasian; 1 not specified.
  3. †most common HIV-related illness included pneumonia/lung infection/PCP pneumonia (n = 6 participants).
  4. ^Most bothersome symptoms included fatigue or loss of energy, feeling sad, down or depressed, and feeling nervous or anxious.
  5. IQR = interquartile range