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Table 2 Mean and median score for patients (n = 64) and caregivers (n = 64), weighted kappa and percentage agreement between patients and caregivers by POS items

From: Caregiver assessment of patients with advanced cancer: concordance with patients, effect of burden and positivity

POS item Patients Caregivers Agreement
  mean(SD) Median (min, max) mean (SD) Median (min, max) Weighted Kappa (95%CI) Percentage agreement(%)
Pain 1.4(1.1) 1(0,4) 1.3(1.0) 1(0,4) 0.69(0.54–0.83) 53.1
Other symptoms 1.2(1.1) 1(0,4) 1.2(1.1) 1(0,4) 0.51(0.31–0.71) 54.7
Feeling anxious 1.0(1.2) 0(0,4) 1.0(1.0) 1(0,4) 0.44(0.20–0.67) 50.0
Family anxious 1.8(1.3) 2(0,4) 1.6(1.2) 1(0,4) 0.49(0.30–0.68) 37.5
Information given* 0.2(0.8) 0(0,4) 0.9(1.6) 0(0,4) 0.04(-0.10–0.17) 71.9
Share feeling* 0.6(1.2) 0(0,4) 1.0(1.3) 1(0,4) 0.48(0.26–0.71) 51.6
Life worthwhile** 0.5(0.8) 0(0,4) 0.9(1.0) 1(0,4) 0.31(0.03–0.58) 48.4
Felt good** 1.0(1.1) 1(0,4) 1.5(1.2) 1(0,4) 0.35(0.12–0.58) 39.1
Waste of time 0.1(0.4) 0(0,2) 0.1(0.4) 0(0,2) 0.38(-0.18–0.93) 95.3
Practical problems 0.5(1.0) 0(0,4) 0.7(1.3) 0(0,4) 0.20(-0.04–0.45) 76.6
Total** 8.2(4.4) 8(0,22) 10.2(5.1) 9(0,26) -- --
Cronbach alpha 0.49   0.55   -- --
  1. Significant difference between patient- and caregiver-ratings is labeled with *, *p < 0.01; **p < 0.001. p < 0.05 is considered statistically significant.