Table 1 Standardized factor loadings

ICCAP dimensions

Contact with caregivers

Doctors clearly explain things

I have good interaction with nurses

Doctors take enough time to listen to me

I am satisfied about my contacts with doctors

Social network

My friends support me

My colleagues are understanding

People around me support me

My friends help me with practical things

I can share worries with my family

I can share worries with good friends

Partner relationship

I feel my partner sympathizes with me

On important issues I agree with my partner

My partner is someone I can talk to

Generally I am happy with my partner

My relationship with my partner is good

State of mind

I feel sad

I feel angry

I wonder whether I am to blame for my child's CA

I feel guilty

Child acceptance

My child fits into my life

My child is welcome in our family as it is

I am happy with my child

I wish my child was never born

Fears and anxiety

My child faces a difficult life

I expect my child will be able to function well

The CA is/are a heavy burden on my child

I wonder whether my child will ever be healthy

I am very anxious about all the tests on my child

My child is facing a difficult period

My child is the same as other children

I worry a great deal about my child's health

I doubt whether my child will be happy later

I fear about my child's expectations for the future

My child is handicapped

I feel I can't do enough for my child

My child will be able to have a normal life later