Table 1 Socio-demographic and RB-related information on the total group, and for RB survivors aged 8–11 years and 12–18 years separately
From: Health-related quality of life of child and adolescent retinoblastoma survivors in the Netherlands
RB survivor total group (N = 65) | RB survivors, children (N = 28) | RB survivors, adolescents (N = 37) | |
|---|---|---|---|
Age (yrs) (mean (SD)) | 12.7 (2.9) | 9.8(0.9) | 14.9 (1.6) |
Age at diagnosis (yrs) (mean (SD)) | 1.6 (1.6) | 1.2 (1.3) | 1.8 (1.8) |
Gender (n (%)) | |||
Female | 31 (48%) | 15 (54%) | 16 (43%) |
Education (n (%)) | |||
Mainstream | 57 (88%) | 23 (82%) | 34 (92%) |
Special | 8 (12%) | 5 (18%) | 3 (8%) |
Hereditary RB (n(%)) | |||
Non-hereditary RB | 35 (54%) | 12 (43%) | 23 (62%) |
Hereditary RB | 30 (46%) | 16 (57%) | 14 (38%) |
Laterality RB (n(%)) | 40 (62%) | 14 (50%) | 26 (70%) |
Unilateral RB | |||
Treatment RB (n(%)) | |||
Enucleation | 39 (60%) | 14 (50%) | 25 (68%) |
Radiotherapy | 10 (15%) | 4 (14%) | 6 (16%) |
Combi enucleation + radiotherapy | 13 (20%) | 8 (29%) | 5 (13%) |
Chemo/laser/plaque | 3 (5%) | 2 (7%) | 1 (3%) |
Visual acuity (n(%)) | |||
Normal vision | 54 (83%) | 22 (79%) | 32 (86%) |
Low vision and blindness | 11 (17%) | 6 (21%) | 5 (14%) |
Life events (n(%)) | |||
None | 18 (28%) | 10 (36%) | 8 (21%) |
Life events | 46 (71%) | 18 (64%) | 28 (76%) |
Missing | 1 (1%) | 1 (3%) | |
Marital status parent (n(%)) | |||
Single-parent family | 20 (31%) | 6 (21%) | 14 (38%) |
Child living with both parents | 45 (69%) | 22 (79%) | 23 (62%) |