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Table 1 Preliminary items in the unreduced AF-QoL questionnaire (AF-QoL-40).

From: Development of a questionnaire to measure health-related quality of life (HRQoL) in patients with atrial fibrillation (AF-QoL)

Due to my arrhythmia (atrial fibrillation)...
   1. I get tired when I climb slopes or stairs.
   2. I get more tired than usual when I carry out physical exercise (jogging, playing tennis, swimming, etc.).
   3. I have reduced the amount of physical exercise (jogging, playing tennis, swimming, etc.) I perform.
   4. I have stopped performing physical exercise (jogging, playing tennis, swimming, etc.).
   5. I get tired when I walk for thirty minutes, and I have to rest.
   6. I get tired during a brisk walk.
   7. I feel palpitations when I run.
   8. I get nervous.
   9. I have felt depressed since I was diagnosed with the disease.
   10. I feel insecure.
   11. I am very aware of my heart and my general health.
   12. I feel sadder and more depressed than before I was diagnosed with my disease.
   13. I get scared when I feel that my heart beats at high speed.
   14. I am afraid that something might happen to me while I am alone.
   15. I have negative thoughts about my future.
   16. I feel depressed when I find that I get tired.
   17. I am afraid of having a sudden and unexpected tachycardia.
   18. I feel anxious when I have tachycardia.
   19. I am afraid that tachycardia will appear again.
   20. I feel insecure when I have to travel.
   21. I only go to places with hospitals nearby.
   22. My disease has an impact on my family life.
   23. I find it difficult to get out of the house to carry out any activity.
   24. I feel very tired.
   25. I feel as if something were pressing against my heart.
   26. I feel exhausted and tired during the arrhythmia (tachycardia).
   27. I feel a general tiredness after the arrhythmia (tachycardia).
   28. I feel depressed when I think that my disease will last forever.
   29. I am afraid of pain or of suffering a heart attack.
   30. What affects me the most is the helplessness I feel when I suffer a crisis (tachycardia or arrhythmia episode).
   31. I feel affected by the impossibility of carrying out certain activities; "I want to, but my body cannot".
   32. I am afraid that my disease complicates things.
   33. My disease has impaired my quality of life.
   34. Changes have occurred in my sexual activity due to the medications I take.
   35. Sexual relationships are less frequent than before I was diagnosed with the disease.
   36. I get tired during sexual intercourse, and that is a limitation I feel.
   37. I am afraid that my heart is "triggered" during sexual intercourse.
   38. I feel a lack of vitality/energy to propose activities.
   39. I felt more vitality before I was diagnosed with the disease.
   40. I wake up at night due to the tachycardia (arrhythmia).