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Table 4 RCC Index Mean Relevancy Item Scores of RCC Patients and Clinicians1

From: Symptom burden among patients with Renal Cell Carcinoma (RCC): content for a symptom index

Item Patient Ratings Clinician Ratings
  Localized Metastatic Total Nurse Physician Total
PAIN       
   I have pain 2.4 1.8 2.1 3.8 4.0 3.9
   Pain interfered with my daily activities 2.0 1.8 1.9 3.8 3.2 3.5
   I have pain in my back 2.0 1.1 1.5 2.4 2.6 2.5
   I have discomfort or pain in my stomach area 1.7 1.8 1.8 2.6 1.8 2.2
BREATHING       
   I have been short of breath 0.7 2.5 1.7 3.8 3.0 3.3
WEAKNESS       
   I have felt weak 2.2 2.8 2.5 4.0 3.6 3.8
MOOD       
   I worry that my condition will get worse 3.0 3.1 3.1 3.6 2.4 3.0
   I have emotional ups and downs 2.6 2.2 2.4 3.6 1.6 2.6
   I feel depressed 2.6 2.0 2.3 3.6 1.8 2.7
   I am able to enjoy life2 2.2 2.8 2.5 3.8 3.0 3.4
SLEEP       
   I have had trouble sleeping 2.5 2.1 2.3 3.6 2.4 3.0
WEIGHT LOSS       
   I am losing weight 1.4 2.0 1.7 3.5 3.6 3.6
COGNITIVE       
   I have difficulty remembering things 1.6 1.6 1.6 3.5 2.0 2.7
   I have trouble concentrating 1.7 2.1 1.9 3.5 2.0 2.7
FATIGUE       
   I feel fatigued 2.3 2.0 2.2 3.8 3.8 3.8
   I have a lack of energy 2.4 2.5 2.5 3.8 3.2 3.4
   I feel tired 2.3 2.1 2.2 3.8 3.0 3.3
   I have trouble starting things because I am tired 1.7 2.1 1.9 3.0 2.0 2.5
   I have trouble finishing things because I am tired 1.9 2.4 2.2 3.0 2.0 2.5
APPETITE       
   I have lacked appetite 1.5 1.9 1.7 3.6 3.6 3.6
   I have a good appetite3 2.5 3.1 2.8 3.0 3.4 3.2
INCONTINENCE (BOWEL OR BLADDER)       
   I have control of my bowels4 2.4 2.5 2.5 2.2 1.6 1.9
   I have trouble moving my bowels 1.6 1.3 1.5 3.6 2.2 2.9
   I urinate more frequently than usual5 1.7 1.7 1.7 2.2 1.6 1.9
   I have difficulty urinating 1.6 1.2 1.4 2.4 1.6 2.0
OTHER SYMPTOMS       
   I have had chills 1.4 1.8 1.6 3.4 2.6 3.0
   I have had fevers 1.3 1.5 1.4 3.8 3.0 3.4
   I have had sweats6 1.2 1.1 1.1 3.8 3.2 3.5
   I feel lightheaded 1.6 1.7 1.6 2.8 2.6 2.7
   I am bothered by blood in my urine7 n/a n/a n/a 2.0 2.8 2.4
  1. 1 Relevancy scores based on a scale of 0–4, where 0 indicated "not at all " relevant and 4 indicated "very much" (or highly) relevant.
  2. 2 "I am able to enjoy life" was slightly modified for clinicians for testing purposes; item tested was "I am content with the quality of my life right now".
  3. 3 Not included due to redundancy with the other appetite item and incompatible direction of question phrasing (positive).
  4. 4,5 Not included due to uncertainty regarding causation: disease or treatment, as well as biological rationale.
  5. 6 Modified from "I am bothered by sweating" for clarity and consistency with other items.
  6. 7 Relevancy ratings not available since item was included based on findings from patient interviews