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Table 4 RCC Index Mean Relevancy Item Scores of RCC Patients and Clinicians1

From: Symptom burden among patients with Renal Cell Carcinoma (RCC): content for a symptom index

Item

Patient Ratings

Clinician Ratings

 

Localized

Metastatic

Total

Nurse

Physician

Total

PAIN

      

   I have pain

2.4

1.8

2.1

3.8

4.0

3.9

   Pain interfered with my daily activities

2.0

1.8

1.9

3.8

3.2

3.5

   I have pain in my back

2.0

1.1

1.5

2.4

2.6

2.5

   I have discomfort or pain in my stomach area

1.7

1.8

1.8

2.6

1.8

2.2

BREATHING

      

   I have been short of breath

0.7

2.5

1.7

3.8

3.0

3.3

WEAKNESS

      

   I have felt weak

2.2

2.8

2.5

4.0

3.6

3.8

MOOD

      

   I worry that my condition will get worse

3.0

3.1

3.1

3.6

2.4

3.0

   I have emotional ups and downs

2.6

2.2

2.4

3.6

1.6

2.6

   I feel depressed

2.6

2.0

2.3

3.6

1.8

2.7

   I am able to enjoy life2

2.2

2.8

2.5

3.8

3.0

3.4

SLEEP

      

   I have had trouble sleeping

2.5

2.1

2.3

3.6

2.4

3.0

WEIGHT LOSS

      

   I am losing weight

1.4

2.0

1.7

3.5

3.6

3.6

COGNITIVE

      

   I have difficulty remembering things

1.6

1.6

1.6

3.5

2.0

2.7

   I have trouble concentrating

1.7

2.1

1.9

3.5

2.0

2.7

FATIGUE

      

   I feel fatigued

2.3

2.0

2.2

3.8

3.8

3.8

   I have a lack of energy

2.4

2.5

2.5

3.8

3.2

3.4

   I feel tired

2.3

2.1

2.2

3.8

3.0

3.3

   I have trouble starting things because I am tired

1.7

2.1

1.9

3.0

2.0

2.5

   I have trouble finishing things because I am tired

1.9

2.4

2.2

3.0

2.0

2.5

APPETITE

      

   I have lacked appetite

1.5

1.9

1.7

3.6

3.6

3.6

   I have a good appetite3

2.5

3.1

2.8

3.0

3.4

3.2

INCONTINENCE (BOWEL OR BLADDER)

      

   I have control of my bowels4

2.4

2.5

2.5

2.2

1.6

1.9

   I have trouble moving my bowels

1.6

1.3

1.5

3.6

2.2

2.9

   I urinate more frequently than usual5

1.7

1.7

1.7

2.2

1.6

1.9

   I have difficulty urinating

1.6

1.2

1.4

2.4

1.6

2.0

OTHER SYMPTOMS

      

   I have had chills

1.4

1.8

1.6

3.4

2.6

3.0

   I have had fevers

1.3

1.5

1.4

3.8

3.0

3.4

   I have had sweats6

1.2

1.1

1.1

3.8

3.2

3.5

   I feel lightheaded

1.6

1.7

1.6

2.8

2.6

2.7

   I am bothered by blood in my urine7

n/a

n/a

n/a

2.0

2.8

2.4

  1. 1 Relevancy scores based on a scale of 0–4, where 0 indicated "not at all " relevant and 4 indicated "very much" (or highly) relevant.
  2. 2 "I am able to enjoy life" was slightly modified for clinicians for testing purposes; item tested was "I am content with the quality of my life right now".
  3. 3 Not included due to redundancy with the other appetite item and incompatible direction of question phrasing (positive).
  4. 4,5 Not included due to uncertainty regarding causation: disease or treatment, as well as biological rationale.
  5. 6 Modified from "I am bothered by sweating" for clarity and consistency with other items.
  6. 7 Relevancy ratings not available since item was included based on findings from patient interviews
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Health and Quality of Life Outcomes

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