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Table 1 Socio-demographic and medical characteristics of the patients

From: Living with muscular dystrophy: health related quality of life consequences for children and adults

 

Children (n = 40)

Adults (n = 67)

Age at study (years)

    

Mean (SD)

12.6 (2.8)

 

40.7 (13.9)

 

Range

8–17

 

18–67

 

Gender (%)

    

- male

38 (95)

 

46 (69)

 

- female

2 (5)

 

21 (31)

 

Age categories (%)

    

- 6–11 years

18 (45)

   

- 12–17 years

22 (55)

   

Type of disease

n

%

n (less severe/severe)

%

- Duchenne Muscular dystrophy (DMD)

36

90

4 (-/4)

6

- Becker muscular dystrophy (BMD)

-

 

25 (16/9)

37

- Sarcoglycanopathies (LGMD2C-F)

4

10

15 (2/13)

22

- Calpaïnopathies (LGMD2A)

  

23 (7/16)

34

  1. Severity: severe = loss of independent walking (Brooke score ≥ 5)