Table 1 Socio-demographic and psychosocial characteristics
From: Quality of life of adult retinoblastoma survivors in the Netherlands
| Â | All RB survivors (N = 87) | Hereditary RB survivors (N = 36) | Non-hereditary RB survivors (N = 51) |
|---|---|---|---|
Age at interview Years: mean (SD) | 26.4 (5.3) | 26.8 (4.8) | 26.2 (5.7) |
Age at diagnosis Years: mean (SD) | 2 (2.0) | 0.69 (1.6)* | 2.7 (1.8)* |
Gender (N (%)) | Â | Â | Â |
Female | 53 (61%) | 25 (69%) | 23 (45%) |
Education (N (%)) | Â | Â | Â |
Low | 16 (18%) | 8 (22%) | 8 (16%) |
Middle | 33 (38%) | 14 (39%) | 19 (37%) |
High | 38 (44%) | 14 (39%) | 24 (47%) |
Marital status (N (%)) | Â | Â | Â |
Single | 37 (43%) | 15 (42%) | 21 (41%) |
Laterality (N (%)) | Â | Â | Â |
Unilateral rb | 56 (64%) | 5 (14%)* | 51 (100%)* |
Treatment (N (%)) | Â | Â | Â |
Only enucleation | 48 (55%) | 5 (14%)* | 43 (84%)* |
Only radiotherapy | 14 (16%) | 14 (39%)* | Â |
Combi enucleation + radiotherapy | 21 (24%) | 14 (39%)* | 7 (14%)* |
Combi enucleation + chemo/laser | 4 (5%) | 3 (8%)* | 1 (2%)* |
Visual acuity (N (%)) | Â | Â | Â |
Normal vision | 78 (90%) | 27 (75%)* | 51 (100%)* |
Low vision | 6 (7%) | 6 (17%)* | Â |
Blindness | 3 (3%) | 3 (8%)* | Â |
Life events (N (%)) | Â | Â | Â |
None | 20 (23%) | 8 (22%) | 12 (24%) |
One or two | 42 (36%) | 17(47%) | 25 (49%) |
More than 2 | 22 (25%) | 9 (25%) | 13 (26%) |
Missing | 3 (3%) | 2 (6%) | 1 (2%) |
Being bullied (N (%)) | Â | Â | Â |
Yes | 77 (88%) | 34 (94%) | 43 (84%) |
Perceived impairment (N(%)) | Â | Â | Â |
Yes | 48 (55%) | 20 (56%) | 28 (55%) |