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Table 1 Socio-demographic and psychosocial characteristics

From: Quality of life of adult retinoblastoma survivors in the Netherlands

  All RB survivors
(N = 87)
Hereditary RB survivors
(N = 36)
Non-hereditary RB survivors
(N = 51)
Age at interview Years: mean (SD) 26.4 (5.3) 26.8 (4.8) 26.2 (5.7)
Age at diagnosis Years: mean (SD) 2 (2.0) 0.69 (1.6)* 2.7 (1.8)*
Gender (N (%))    
Female 53 (61%) 25 (69%) 23 (45%)
Education (N (%))    
Low 16 (18%) 8 (22%) 8 (16%)
Middle 33 (38%) 14 (39%) 19 (37%)
High 38 (44%) 14 (39%) 24 (47%)
Marital status (N (%))    
Single 37 (43%) 15 (42%) 21 (41%)
Laterality (N (%))    
Unilateral rb 56 (64%) 5 (14%)* 51 (100%)*
Treatment (N (%))    
Only enucleation 48 (55%) 5 (14%)* 43 (84%)*
Only radiotherapy 14 (16%) 14 (39%)*  
Combi enucleation + radiotherapy 21 (24%) 14 (39%)* 7 (14%)*
Combi enucleation + chemo/laser 4 (5%) 3 (8%)* 1 (2%)*
Visual acuity (N (%))    
Normal vision 78 (90%) 27 (75%)* 51 (100%)*
Low vision 6 (7%) 6 (17%)*  
Blindness 3 (3%) 3 (8%)*  
Life events (N (%))    
None 20 (23%) 8 (22%) 12 (24%)
One or two 42 (36%) 17(47%) 25 (49%)
More than 2 22 (25%) 9 (25%) 13 (26%)
Missing 3 (3%) 2 (6%) 1 (2%)
Being bullied (N (%))    
Yes 77 (88%) 34 (94%) 43 (84%)
Perceived impairment (N(%))    
Yes 48 (55%) 20 (56%) 28 (55%)
  1. *Significant difference (p < 0.05) between hereditary and non-hereditary survivors of RB.