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Table 2 Overview of ITP-PAQ Scales and Item Variability

From: A disease-specific measure of health-related quality of life for use in adults with immune thrombocytopenic purpura: Its development and validation

ITP-PAQ Scales

No. of Items

Mean

Range

Example Item

Symptoms

6

3.79 (0.72)

1.86 – 5.00

In the past 4 weeks, how often did you have bleeding episodes (nose bleeds, gum bleeds, etc)?

Bother-Physical Health

3

3.62 (1.01)

1.00 – 5.00

Overall, in the past 4 weeks, how bothered have you been by the effect of ITP and its treatment(s) on your physical health?

Fatigue/Sleep

4

3044 (1.15)

1.25 – 5.00

In the past 4 weeks, how often did ITP or its treatments cause you to feel physically fatigued?

Activity

2

3.55 (1.37)

1.00 – 5.00

In the past 4 weeks, how much has your ITP symptoms or the effects of its treatments interfered with your ability to exercise?

Fear

5

4.22 (0.74)

1.50 – 5.00

In the past 4 weeks, how fearful have you been of having a bleeding episode (nose bleeds, gum bleeds, etc)?

Psychological Health

5

3.59 (0.98)

1.00 – 5.00

In the past 4 weeks, how often did you have feelings of sadness or depression because of your ITP or its treatments?

Work

4

4.13 (0.99)

1.75–5.00

Since you were diagnosed, to what degree has ITP negatively interfered with your choice of career(s)?

Social Activity

4

4.26 (0.65)

2.33 – 5.00

In the past 4 weeks, how often has ITP limited your ability to participate in social activities?

Women's Reproductive Health

6

3.78 (0.98)

1.00 – 5.00

Thinking about your last period, how bothered were you by: heavier bleeding than before having ITP?

Overall QoL

5

3.08 (1.13)

1.00 – 5.00

Overall, in the past 4 weeks, to what extent has ITP and its treatment(s) affected your quality of life?

Total

44