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Table 2 Overview of ITP-PAQ Scales and Item Variability

From: A disease-specific measure of health-related quality of life for use in adults with immune thrombocytopenic purpura: Its development and validation

ITP-PAQ Scales No. of Items Mean Range Example Item
Symptoms 6 3.79 (0.72) 1.86 – 5.00 In the past 4 weeks, how often did you have bleeding episodes (nose bleeds, gum bleeds, etc)?
Bother-Physical Health 3 3.62 (1.01) 1.00 – 5.00 Overall, in the past 4 weeks, how bothered have you been by the effect of ITP and its treatment(s) on your physical health?
Fatigue/Sleep 4 3044 (1.15) 1.25 – 5.00 In the past 4 weeks, how often did ITP or its treatments cause you to feel physically fatigued?
Activity 2 3.55 (1.37) 1.00 – 5.00 In the past 4 weeks, how much has your ITP symptoms or the effects of its treatments interfered with your ability to exercise?
Fear 5 4.22 (0.74) 1.50 – 5.00 In the past 4 weeks, how fearful have you been of having a bleeding episode (nose bleeds, gum bleeds, etc)?
Psychological Health 5 3.59 (0.98) 1.00 – 5.00 In the past 4 weeks, how often did you have feelings of sadness or depression because of your ITP or its treatments?
Work 4 4.13 (0.99) 1.75–5.00 Since you were diagnosed, to what degree has ITP negatively interfered with your choice of career(s)?
Social Activity 4 4.26 (0.65) 2.33 – 5.00 In the past 4 weeks, how often has ITP limited your ability to participate in social activities?
Women's Reproductive Health 6 3.78 (0.98) 1.00 – 5.00 Thinking about your last period, how bothered were you by: heavier bleeding than before having ITP?
Overall QoL 5 3.08 (1.13) 1.00 – 5.00 Overall, in the past 4 weeks, to what extent has ITP and its treatment(s) affected your quality of life?
Total 44