Original 37-Item Questionnaire | Stoma-QOL + : item included - : item excluded |
---|---|
1. I worry about skin problems where the pouch attaches | - |
2. Because of my stoma I prefer eating at home | - |
3. I feel the need to know where the nearest toilet is | + |
4. I become anxious when the pouch is full | + |
5. I feel tired during the day | + |
6. I worry that my family will reject me | - |
7. I avoid sexual intimacy because of my stoma | - |
8. I am afraid of meeting new people | + |
9. I am preoccupied by what I can eat and drink | - |
10. I worry that friends will reject me | - |
11. My sleep is interrupted because of my stoma | - |
12. I avoid sleeping in certain positions | - |
13. It is difficult to hide the fact that I wear a pouch | + |
14. I have to avoid drinks that I like | - |
15. I have problems falling asleep | - |
16. My stoma makes it difficult for me to be with other people | + |
17. I sleep badly during the night | + |
18. I feel lonely even when I am with other people | + |
19. I need to rest during the day | + |
20. I worry about the pouch leaking | - |
21. I worry that my condition is a burden to people close to me | + |
22. I avoid close physical contact with my friends | + |
23. I worry that my family feel awkward around me | + |
24. I feel embarrassed about my body because of my stoma | + |
25. It would be difficult for me to stay away from home overnight | + |
26. I worry that the pouch rustles | + |
27. I worry that the pouch may smell | + |
28. I am afraid of being rejected sexually because of my stoma | - |
29. My stoma makes me feel sexually unattractive | + |
30. I worry that my friends feel awkward around me | - |
31. I have to think about my pouch when planning my day | - |
32. I avoid close physical contact with my family | - |
33. I worry about noises from the stoma | + |
34. I worry that the pouch will loosen | + |
35. My stoma pouch limits the choice of clothes that I can wear | + |
36. I have to avoid situations where I over-perspire (for example, brisk walking or sports) | - |
37. I avoid getting changed in front of other people | - |