|
Number of Items
|
---|
Domains in conceptual framework
|
CRQ-SAS k = 20†
|
SF-36 k = 36†
|
SGRQ k = 50†
|
WHOQOL-100 k = 100†
|
1. IPF Symptoms
|
5‡
|
14§
| 33 ∥ |
0
|
2. IPF Therapy
|
0
|
0
|
4**
|
0
|
3. Sleep
|
0
|
0
|
0
|
4
|
4. Exhaustion
|
4
|
4¶
|
2
|
4¶
|
5. Forethought
|
0
|
0
|
2
|
0
|
6. Employment and Finances
|
0
|
0
|
1
|
8
|
7. Dependence
|
0
|
0
|
0
|
0
|
8. Family
|
0
|
1
|
0
|
3
|
9. Sexual Relations
|
0
|
0
|
0
|
4
|
10. Social Participation
|
0
|
2
|
2
|
9
|
11. Mental and Spiritual Well-being
|
11
|
8
|
6
|
12
|
12. Mortality
|
0
|
0
|
0
|
0
|
-
† These columns show how each item from the CRQ-SAS, SF-36, SGRQ, and WHOQOL-100 maps onto the domains identified in this study; ‡One item mentions cough; §These items address the impact of physical health on activities but do not specifically address symptoms (e.g., breathlessness and cough); ∥Two items are about wheezing and two are about "attacks of chest trouble", making them irrelevant for patients with IPF; ¶These items ask about energy level and fatigue, but none of them pertain to exhaustion; **Items do not pertain specifically to IPF therapy; CRQ-SAS = Chronic Respiratory Questionnaire Self-Administered Standardized Format; SF-36 = Medical Outcomes Study Short-Form 36-item Instrument; SGRQ = St. George's Respiratory Questionnaire; WHOQOL-100 = World Health Organization 100-item Quality of Life Instrument.