Table 2 Definitions of domains in conceptual framework for describing HRQL in Patients with IPF
From: Patients' perspectives on how idiopathic pulmonary fibrosis affects the quality of their lives
Domain | Definition |
|---|---|
1. Symptoms | Amount, severity, and impact of cough and breathlessness; impact of symptoms on physical functioning |
2. IPF Therapy | Feelings toward medications and impact of medications on physical and mental health; supplemental oxygen use and impact on quality of life |
3. Sleep | Quality and quantity of sleep; impact of sleep disturbance |
4. Exhaustion | Lack of energy; feeling exhausted; impact of energy/exhaustion on quality of life |
5. Forethought | Need to plan and prepare for activities before undertaking them; others' appreciation for the amount of planning and preparation required; impact of need for forethought on quality of life |
6. Employment and Finances | Effects on employment status and financial security |
7. Dependence | Need to rely/depend on other people; need to ask for help; fear of being a burden |
8 Family | Impact of disease on family and relationships with family members |
9. Sexual Relations | Limitations on sexual activity and sexuality; impact of impaired sexual relations on quality of life |
10. Social Participation and Leisure Activities | Impact on functioning in relationships, social interactions; social isolation; attention to use of time |
11. Mental and Spiritual Well-being | Psychological effects including fear, worry, anxiety; problems concentrating/focusing; effects on spirituality/spiritual self |
12. Mortality | Feelings about death and dying; thoughts on mortality; impact on quality of life |