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Table 2 Generic AusTOMs scales (Perry et al, 2004)

From: Validity of the AusTOM scales: A comparison of the AusTOMs and EuroQol-5D

Impairment of either Structure or Function (as appropriate to age):

 

Impairments are problems in body structure (anatomical) or function (physiological) as a significant deviation or loss.

 

0

The most severe presentation of impairment (either structure or function)

1

Severe presentation of this impairment

2

Moderate/severe presentation

3

Moderate presentation

4

Mild presentation

5

No impairment of structure or function

Activity Limitations (as appropriate to age):

 

Activity limitation results from the difficulty in the performance of an activity. Activity is the execution of a task by the individual.

 

0

Complete difficulty

1

Severe difficulty

2

Moderate/severe difficulty

3

Moderate difficulty

4

Mild difficulty

5

No difficulty

Participation Restrictions (as appropriate to age):

 

Participation restrictions are difficulties the individual may have in the manner or extent of involvement in their life situation. Clinicians should ask themselves: "given their problem, is this individual experiencing disadvantage?"

 

0

Unable to fulfill social, work, educational or family roles. No social integration. No involvement in decision-making. No control over environment. Unable to reach potential in any situation.

1

Severe difficulties in fulfilling social, work, educational or family roles. Very limited social integration. Very limited involvement in decision-making. Very little control over environment. Can only rarely reach potential with maximum assistance.

2

Moderately severe difficulties in fulfilling social, work, educational or family roles. Limited social integration. Limited involvement in decision-making. Control over environment in one setting only. Usually reaches potential with maximum assistance.

3

Moderate difficulties in fulfilling social, work, educational or family roles. Relies on moderate assistance for social integration. Limited involvement in decision-making. Control over environment in more than one setting. Always reaches potential with maximum assistance and sometimes reaches potential without assistance.

4

Mild difficulties in fulfilling social, work, educational or family roles. Needs little assistance for social integration and decision-making. Control over environment in more than one setting. Reaches potential with little assistance.

5

No difficulties in fulfilling social, work, educational or family roles. No assistance required for social integration or decision-making. Control over environment in all settings. Reaches potential with no assistance.

Wellbeing/Distress (as appropriate to age):

 

The level of concern experienced by the individual. Concern may be evidenced by anxiety, anger, frustration etc.

 

0.

High and consistent levels of distress or concern.

1.

Severe concern, becomes distressed or concerned easily. Requires constant reassurance. Loses emotional control easily.

2.

Moderately severe concern. Frequent emotional encouragement and reassurance required.

3.

Moderate concern. May be able to manage emotions at times, although may require some encouragement.

4.

Mild concern. Able to manage emotions in most situations. Occasional emotional support or encouragement needed.

5.

Able to cope with most situations. Accepts and understands own limitations.