From: “Getting stuck with LAM”: patients perspectives on living with Lymphangioleiomyomatosis
Age in years | 52 (1st quartile - 3rd quartile 47–61; range 34–68) |
Female | 37 (100%) |
Ethnicity* | |
Non-Hispanic | 34 |
Hispanic | 1 |
Race* | |
Asian | 1 |
Black | 0 |
Other | 1 |
White | 33 |
LAM | |
Sporadic | 32 |
TSC | 5 |
LAM duration in years | 7.0 (1st quartile - 3rd quartile 2.2-15.2; range 0.4-39.0) N = 33 |
FEV1% | 66 (1st quartile - 3rd quartile 39–74; range 2–99) N = 30 |
Using supplemental oxygen | 16 (55%) N = 29 |
Taking sirolimus | 18 (72%) N = 25 |
Work status** | |
Full-time | 13 |
Part-time | 10 |
Disabled | 6 |
Retired | 3 |
Other | 2 |
Education: Bachelor’s degree or more** | 26 (76%) |