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Table 1 Baseline characteristics of 37 focus group participants with LAM

From: “Getting stuck with LAM”: patients perspectives on living with Lymphangioleiomyomatosis

Age in years

52 (1st quartile - 3rd quartile 47–61; range 34–68)

Female

37 (100%)

Ethnicity*

 

 Non-Hispanic

34

 Hispanic

1

Race*

 

 Asian

1

 Black

0

 Other

1

 White

33

LAM

 

 Sporadic

32

 TSC

5

LAM duration in years

7.0 (1st quartile - 3rd quartile 2.2-15.2; range 0.4-39.0) N = 33

FEV1%

66 (1st quartile - 3rd quartile 39–74; range 2–99) N = 30

Using supplemental oxygen

16 (55%) N = 29

Taking sirolimus

18 (72%) N = 25

Work status**

 

 Full-time

13

 Part-time

10

 Disabled

6

 Retired

3

 Other

2

Education: Bachelor’s degree or more**

26 (76%)

  1. *N = 35; **N = 34; Values are counts (%) or median (1st quartile - 3rd quartile; range).