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Table 2 Main themes and sub themes

From: Quality of life in children and adolescents with Osteogenesis Imperfecta: a qualitative interview based study

Main themes

Sub themes

Being safe and careful

Avoidance of activities

 

Trying to be safe

Reduced function

Reduced function with fractures

 

Equipment/adaptation

 

Tiredness/fatigue

Pain

General aches and pains

 

Pain of fractures

 

Pain relief

Fear

Fear of fracture

 

Activities/handling

 

Needle phobia

Isolation

Isolation from peers

 

Being different

Independence

Pushing for independence

 

Over protection

 

Opportunities