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Table 1 Demographic characteristics of the participants

From: Development of a new occupational balance-questionnaire: incorporating the perspectives of patients and healthy people in the design of a self-reported occupational balance outcome instrument

 

Qualitative study

Validation study

Characteristics

Health conditions

Health conditions

 

Crohn’s disease

Diabetes mellitus type 1

Healthy

Rheumatoid arthritis

Systemic lupus erythematosus

Systemic sclerosis

Healthy

Rheumatoid arthritis

Systemic lupus erythematosus

n participants

15

15

15

15

15

15

76

132

43

n (%)

         

Female

8 (53)

8 (53)

10 (67)

11 (73)

9 (53)

11 (73)

48 (63)

116 (88)

41 (95)

Employed+

8 (53)

8 (53)

11 (73)

0

10 (67)

4 (27)

65 (86)

42 (32)

21 (49)

β-Blocker/ACE inhibitors/statins

1(7)

6 (40)

--

3 (20)

9 (60)

9 (60)

--

43 (35)

17 (46)

DMARD

7 (47)

--

--

15 (100)

9 (60)

2 (13)

--

70 (54)

32 (76)

Biologic

5 (33)

--

--

8 (47)

0

0

--

54 (42)

0

ASA

9 (60)

--

--

--

--

--

--

--

--

Cortisone

--

--

--

5 (33)

10 (67)

4 (27)

--

47 (36)

26 (63)

Low disease activity/remission

11 (73)a

3 (27)b

--

7 (47)c

1 (7)d

10(67)e

--

96 (72)c

36 (83)e

Median (IQR)

         

Age

46

53

36

54

46

67

38

59

46

 

(34-60)

(36-63)

(32-62)

(43-58)

(32-60)

(50-74)

(27-49)

(48-65)

(36-53)

Disease duration

15

20

--

11

10

10

--

10

10

 

(8-30)

(11-40)

 

(9-20)

(8-19)

(4-16)

 

(4-16)

(8-17)

  1. Abbreviations: n number, (%) percentage, + employed/self-employed, β-Blocker/ACE inhibitors/statins took Beta-blocker, ACE-inhibitors and/or statins, DMARD disease-modifying anti-rheumatic drugs, Biologic biologic DMARDs, aHarvey Bradshaw Index (HBI)[32], bexcellent glycosylated haemoglobin below 53 millimoles per litre (mmol/l, 7.0%, Hba1c)[33], cClinical Disease Activity Index (CDAI)[34], dSystemic Lupus Erythematosus Disease Activity Index (SLEDAI)[35, 36], eRodnan skin score = total remission < 10 (RODNAN)[37], IQR interquartile range, -- not applicable.