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Table 1 Demographic characteristics of the participants

From: Development of a new occupational balance-questionnaire: incorporating the perspectives of patients and healthy people in the design of a self-reported occupational balance outcome instrument

  Qualitative study Validation study
Characteristics Health conditions Health conditions
  Crohn’s disease Diabetes mellitus type 1 Healthy Rheumatoid arthritis Systemic lupus erythematosus Systemic sclerosis Healthy Rheumatoid arthritis Systemic lupus erythematosus
n participants 15 15 15 15 15 15 76 132 43
n (%)          
Female 8 (53) 8 (53) 10 (67) 11 (73) 9 (53) 11 (73) 48 (63) 116 (88) 41 (95)
Employed+ 8 (53) 8 (53) 11 (73) 0 10 (67) 4 (27) 65 (86) 42 (32) 21 (49)
β-Blocker/ACE inhibitors/statins 1(7) 6 (40) -- 3 (20) 9 (60) 9 (60) -- 43 (35) 17 (46)
DMARD 7 (47) -- -- 15 (100) 9 (60) 2 (13) -- 70 (54) 32 (76)
Biologic 5 (33) -- -- 8 (47) 0 0 -- 54 (42) 0
ASA 9 (60) -- -- -- -- -- -- -- --
Cortisone -- -- -- 5 (33) 10 (67) 4 (27) -- 47 (36) 26 (63)
Low disease activity/remission 11 (73)a 3 (27)b -- 7 (47)c 1 (7)d 10(67)e -- 96 (72)c 36 (83)e
Median (IQR)          
Age 46 53 36 54 46 67 38 59 46
  (34-60) (36-63) (32-62) (43-58) (32-60) (50-74) (27-49) (48-65) (36-53)
Disease duration 15 20 -- 11 10 10 -- 10 10
  (8-30) (11-40)   (9-20) (8-19) (4-16)   (4-16) (8-17)
  1. Abbreviations: n number, (%) percentage, + employed/self-employed, β-Blocker/ACE inhibitors/statins took Beta-blocker, ACE-inhibitors and/or statins, DMARD disease-modifying anti-rheumatic drugs, Biologic biologic DMARDs, aHarvey Bradshaw Index (HBI)[32], bexcellent glycosylated haemoglobin below 53 millimoles per litre (mmol/l, 7.0%, Hba1c)[33], cClinical Disease Activity Index (CDAI)[34], dSystemic Lupus Erythematosus Disease Activity Index (SLEDAI)[35, 36], eRodnan skin score = total remission < 10 (RODNAN)[37], IQR interquartile range, -- not applicable.