Demographic characteristic | Cognitive interviews (N = 72) | Survey (N = 285) |
---|---|---|
Age | ||
Mean (SD) | 45.1 (15.9) | 40.1 (12.8) |
Median | 42.0 | 38.0 |
Range | 18-84 | 18-88 |
Gender | ||
Women N (%) | 48 (66.7) | 197 (69.1) |
Primary diagnosis N (%) | ||
HIV only | 43 (59.7) | 230 (80.7) |
Cancer only | 28 (38.9) | 51 (17.9) |
MND | 1 (1.4) | 0 |
Multiple sclerosis | 0 | 1 (0.4) |
Systemic lupus erythematosus | 0 | 1 (0.4) |
Korsakoff’s syndrome | 0 | 1 (0.4) |
Of HIV + patients: | ||
On ART N (%) | 24 (55.8) | 127 (55.2)a |
Prior AIDS diagnosis N (%) | 37 (86.0) | 192 (83.5) |
Dual HIV-cancer diagnosis N (%) | 5 (11.6) | 35 (15.2) |
ECOG Functional status N (%) | ||
Fully active | 8 (11.1) | 21 (7.4) |
Restricted | 24 (33.3) | 65 (22.8) |
Ambulatory | 17 (23.6) | 79 (27.7) |
Limited self care | 13 (18.1) | 87 (30.5) |
Completely disabled | 10 (13.9) | 33 (11.6) |
Primary place of palliative care N (%) | ||
Home | 49 (68.1) | 180 (63.2) |
Inpatient | 16 (22.2) | 74 (26) |
Outpatient | 3 (4.2) | 13 (4.6) |
Day care | 4 (5.6) | 18 (6.3) |
Weeks under palliative care | ||
Mean (SD) | 63.5 (91.6)a | 46.0 (74.8) |
Median | 26.0 | 12.0 |
Range | 1-427a | 0-468 |
If Christian, church affiliation (where described) N (%) | Not available | |
Catholic | 11 (20) | |
Anglican | 5 (9.1) | |
Pentecostal | 5 (9.1) | |
Methodist | 4 (7.3) | |
Dutch reformed church | 2 (3.6) | |
United Presbyterian-congregational | 1 (1.8) | |
Calvinist | 1 (1.8) | |
Christian, not stated | 24 (43.6) | |
Other* | 2 (3.6) | |
Responsible for children? | ||
Yes N (%) | 53 (73.6) | 232 (81.4) |
If yes, mean no. children (SD) | 2.9 (1.8) | 3.1 (2.0) |
If yes, median | 2.0 | 3.0 |
If yes, range | 1-9 | 1-12 |
Household size | ||
Mean (SD) | 4.9 (3.1)a | 5.3 (2.5)b |
Median | 4.0 | 5.0 |
Range | 1-20a | 1-14b |
Location of home N (%) | ||
Urban | 23 (31.9) | 53 (18.6) |
Peri-urban | 26 (36.1) | 53 (18.6) |
Rural | 23 (31.9) | 179 (62.8) |