From: The Caregiver Burden Questionnaire for Heart Failure (CBQ-HF): face and content validity
Items deleted following set 2 cognitive debriefing interviews based on feedback from all 18 caregivers | ||
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Item | Number of caregivers who did not find the item relevant (or other rationale for deletion) | Example quote to support deletion |
How much has caregiving caused you health problems? | 8/18 (plus caregivers found it difficult to attribute health problems specifically to caregiving) | “Not at all. I haven’t had any problems related - not that I know of” (04–08) |
How much have you felt overly relied upon by the person you care for? | 6/18 (plus conceptual equivalence to the item ‘have you felt the person you care for asks for too much’ considered easier to understand) | “I would say we’ve been through this before. You know the rules” (03–08) |
How much has caregiving made you feel resentful? | 12/18 (plus 3/18 caregivers found it difficult to understand) | “Not at all. I don’t resent that, because my grandfather took care of me as a kid” (04–03) |
How much has caregiving made you feel depressed? | 7/18 (plus 4/9 caregivers from set 1 considered ‘depression’ too severe or clinical a term; 15/18 caregivers found the item ‘how much has caregiving made you feel sad’ more relevant | “I don’t think both of those are necessary because it’s kind of the same. I prefer sad just because depressed just sounds…a little harsher, I guess” (04–04) |
How much has caregiving made you feel helpless? | 11/18 (plus 12/18 caregivers considered the item ‘has caregiving made you feel overwhelmed’ more relevant) | “ But I can do it, help her with things, so [it isn’t relevant]” (03–08) |
How much have you been unable to do the things you want to do? | 7/18 (plus 15/18 caregivers considered the item ‘have you felt like you have no time for yourself’ more relevant) | “There’s nothing I really want to do right now.” (03–04) |
How much has caregiving limited your travelling? | 8/18 (plus conceptual equivalence with the items ‘has caregiving caused you to change/avoid making plans’ and ‘have you felt you cannot be away from the person you care for’ considered more relevant.) | “Because I drive, I do what I want to do - as far as traveling.” (03–05) |